Public Charity

CURE TAY-SACHS FOUNDATION

Based in PHOENIX, AZ, CURE TAY-SACHS FOUNDATION operates as a Public Charity. The organization reported $141K in revenue, $251K in expenses, $1.9M in total assets for fiscal year 2024. Imperigo tracks 8 reported grant relationships connected to this organization totaling approximately $102K.

EIN: 260256621 PHOENIX, AZ Latest filing: 2024
Total Revenue$141K
Total Expenses$251K
Total Assets$1.9M
Grant Records8
Funding Total$102K
Filing Years2019–2024

Mission

THE CURE TAY-SACHS FOUNDATION HAS BEEN CREATED TO FUND THE RESEARCH INITIATIVES THAT SHOW PROMISE TO TREAT AND ULTIMATELY CURE TAY-SACHS DISEASE (TSD). TSD IS HEREDITARY DISEASE PASSED ON WHEN TWO CARRIER PARENTS BOTH PASS THE TAY-SACHS GENE TO THEIR CHILD. TAY-SACHS HAS THREE FORMS - THE CLASSIC OR INFANTILE FORM, THE JUVENILE ONSET FORM AND THE LATE ON-SET FORM KNOWN AS LOTS. CHILDREN INFECTED WITH THE INFANTILE OR JUVENILE FORM CURRENTLY HAVE A 100% MORTAILITY RATE - NO CHILD HAS EVER SURVIVED THIS DISEASE. WE AIM TO CHANGE THAT.

Officers & Directors

DIRECTOR Brianne Anderson
DIRECTOR Brian Plick
TREASURER Bruce Steiger
DIRECTOR Cheryl Babo
DIRECTOR Deepa Kodali
DIRECTOR Holly Mcdonald

Officer compensation and complete director data available with membership.

Top Grant Purposes

GENERAL SUPPORT
$70,488 2 grants
TAKE-A-HIKE TAY SACHS 2025
$10,000 1 grant
TAKE A HIKE TAY SACHS 2024
$8,000 1 grant
Unrestricted
$5,907 1 grant
2022 TAKE A HIKE TAY-SACHS VIRTUAL 5K
$5,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $141K $251K $1.9M
2023 $108K $189K $2.1M
2022 $448K $238K $2.3M
2020 $290K $154K $2.1M
2019 $398K $220K $2.0M

Between 2019 and 2024, reported annual revenue declined from $398K to $141K (-65%), with total assets most recently reported at $1.9M.

Interactive year-over-year charts and full filing details available with membership.

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