Public Charity

DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF AMERICA

DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF AMERICA, of BOULDER, CO, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $2.4M in revenue, $2.4M in expenses, $1.3M in total assets. 58 publicly reported grants to this organization, totaling roughly $3.2M, appear in IRS filings.

EIN: 112519726 BOULDER, CO Latest filing: 2025
Total Revenue$2.4M
Total Expenses$2.4M
Total Assets$1.3M
Grant Records58
Funding Total$3.2M
Filing Years2021–2025

Mission

DEBRA IS DEDICATED TO FINDING A CURE FOR EBIDERMOLYSIS BULLOSA " EB" WHICH EFFECTS 1 OUT OF EVERY 50,000 LIVE BIRTHS IN THE UNITED STATES TODAY. EB IS A GENETICALLY BASED DISEASE CHARACTERIZED BY CHRONIC, PAINFULL BLISTERING. THE SKIN AND MUCOUS MEMBRANES ARE SO FRAGILE THAT THE SLIGHTEST TOUCH CAN CAUSE SEVERE BLISTERING INSIDE AND OUTSIDE THE BODY. PRESENT AT BIRTH, EB EFFECTS MEN AND WOMEN OF ALL RACES AND ETHNIC GROUPS, AND SOMETIMES, WHEN THERE IS NO FAMILY HISTORY. IT OCCURS AS THE RESULT OF A SPONTANEOUS GENETIC MUTATION. TODAY, THERE IS NO CURE OR TREATMENT FOR EB, EXCEPT DAILY WOUND CARE AND BANDAGING. GENETIC RESEARCH IS MAKING PROGRESS TOWARDS TREATMENTS AND A CURE.

Sample Grants Received

EB RESEARCH PARTNERSHIP INC
2024
TO FUND RESEARCH TO FIND A CURE FOR EB
$250,000
VANGUARD CHARITABLE ENDOWMENT PROGRAM
2024
FOR RECIPIENT'S EXEMPT PURPOSE
$150,000
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
2024
UNRESTRICTED GENERAL SUPPORT
$100,000
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
2024
For grant recipient's exempt purposes
$20,715
$13,437

Showing up to 5 of 58 total records — full history available with membership.

Officers & Directors

DIRECTOR Angela Christiano Phd
EXECUTIVE DIRECTOR Brett Kopelan
TREASURER J Alec Alexander
DIRECTOR James Wetrich
SECRETARY John Lee
DIRECTOR Leslie Rader

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$856,700 9 grants
FOR RECIPIENT'S EXEMPT PURPOSE
$376,000 3 grants
UNRESTRICTED GENERAL SUPPORT
$300,000 3 grants
FOR GENERAL SUPPORT.
$300,000 3 grants
TO FUND RESEARCH TO FIND A CURE FOR EB
$250,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $2.4M $2.4M $1.3M
2024 $3.2M $3.6M $1.4M
2023 $2.6M $1.6M $1.9M
2022 $3.4M $2.0M $2.1M
2021 $1.1M $1.7M $2.2M

Between 2021 and 2025, reported annual revenue grew from $1.1M to $2.4M (+117%), with total assets most recently reported at $1.3M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF AMERICA

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