Public Charity

DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF AMERICA

DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF AMERICA, of BOULDER, CO, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $3.2M in revenue, $3.6M in expenses, $1.4M in total assets. 57 publicly reported grants to this organization, totaling roughly $3.0M, appear in IRS filings.

EIN: 112519726 BOULDER, CO Latest filing: 2024
Total Revenue$3.2M
Total Expenses$3.6M
Total Assets$1.4M
Grant Records57
Funding Total$3.0M
Filing Years2020–2024

Mission

DEBRA IS DEDICATED TO FINDING A CURE FOR EBIDERMOLYSIS BULLOSA " EB" WHICH EFFECTS 1 OUT OF EVERY 50,000 LIVE BIRTHS IN THE UNITED STATES TODAY. EB IS A GENETICALLY BASED DISEASE CHARACTERIZED BY CHRONIC, PAINFULL BLISTERING. THE SKIN AND MUCOUS MEMBRANES ARE SO FRAGILE THAT THE SLIGHTEST TOUCH CAN CAUSE SEVERE BLISTERING INSIDE AND OUTSIDE THE BODY. PRESENT AT BIRTH, EB EFFECTS MEN AND WOMEN OF ALL RACES AND ETHNIC GROUPS, AND SOMETIMES, WHEN THERE IS NO FAMILY HISTORY. IT OCCURS AS THE RESULT OF A SPONTANEOUS GENETIC MUTATION. TODAY, THERE IS NO CURE OR TREATMENT FOR EB, EXCEPT DAILY WOUND CARE AND BANDAGING. GENETIC RESEARCH IS MAKING PROGRESS TOWARDS TREATMENTS AND A CURE.

Officers & Directors

DIRECTOR Angela Christiano Phd
EXECUTIVE DIRECTOR Brett Kopelan
TREASURER J Alec Alexander
DIRECTOR James Wetrich
SECRETARY John Lee
Director Jouni Uitto

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$856,700 9 grants
FOR GENERAL SUPPORT.
$300,000 3 grants
UNRESTRICTED GENERAL SUPPORT
$300,000 3 grants
TO FUND RESEARCH TO FIND A CURE FOR EB
$250,000 1 grant
GENERAL SUPPORT
$232,102 11 grants

Financial Trends

Year Revenue Expenses Assets
2024 $3.2M $3.6M $1.4M
2023 $2.6M $1.6M $1.9M
2022 $3.4M $2.0M $2.1M
2021 $1.1M $1.7M $2.2M
2020 $1.9M $1.4M $3.0M

Between 2020 and 2024, reported annual revenue grew from $1.9M to $3.2M (+68%), with total assets most recently reported at $1.4M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF AMERICA

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