Public Charity

CYSTINOSIS RESEARCH FOUNDATION

CYSTINOSIS RESEARCH FOUNDATION, of IRVINE, CA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $3.2M in revenue, $3.4M in expenses, $10.0M in total assets. 65 publicly reported grants to this organization, totaling roughly $4.5M, appear in IRS filings.

EIN: 320067668 IRVINE, CA Specifically Named Diseases Research NTEE: H80 Latest filing: 2025
Total Revenue$3.2M
Total Expenses$3.4M
Total Assets$10.0M
Grant Records65
Funding Total$4.5M
Filing Years2021–2025

Mission

CRF is committed to finding a cure through an aggressively funded research agenda. CRF awards research grants bi-annually to accelerate the research process and to ensure that there is never a gap in funding new, cutting-edge research projects. CRF is dedicated to improving the quality of life for cystinosis patients and to finding better treatments, including a cure, for our adults and children living with cystinosis.

Where $100 goes at Cystinosis Research Foundation

How Cystinosis Research Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.

$84 Programs the work itself
$7 Management running the organization
$9 Fundraising raising the next dollar

Inside the $84 for programs

$84
EDUCATIONThe Cystinosis Research Foundation is dedicated to educating the cystinosis community, the public and the medical community about cystinosis to ensure early diagnosis and immediate and proper treatment.NATALIES…
All program spending · Reported in the filing: 2,500 children; 59 families; 171 patients
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Trustee Angela Kirchoff
Trustee Barbara Kulyk
Trustee Brian Sturgis
Trustee Bruce Crair
Trustee Clay Emerson Phd Pe Cfm
Trustee David W Mossman

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health & Medicine
$2,734,700 29 grants
General Support
$824,502 26 grants
Research & Policy
$713,000 6 grants
Arts & Culture
$208,200 1 grant
Unspecified
$41,777 2 grants

Financial Trends

Year Revenue Expenses Assets
2025 $3.2M $3.4M $10.0M
2024 $3.2M $4.2M $10.4M
2023 $3.2M $2.9M $10.3M
2022 $3.6M $3.1M $10.2M
2021 $3.8M $3.5M $10.3M

Between 2021 and 2025, reported annual revenue declined from $3.8M to $3.2M (-17%), with total assets most recently reported at $10.0M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for CYSTINOSIS RESEARCH FOUNDATION

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