Mission
EB RESEARCH PARTNERSHIP IS THE LARGEST ORGANIZAION DEDICATED TO FUNDING RESEARCH FOR TREATMENTS AND A CURE FOR EPIDERMOLYSIS BULLOSA, A GROUP OF DEVASTATING AND LIFE THREATENING GENETIC SKIN DISORDERS THAT AFFECT CHILDREN FROM BIRTH.
Public Charity
EB RESEARCH PARTNERSHIP INC
EB RESEARCH PARTNERSHIP INC, of NEW YORK, NY, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $8.2M in revenue, $6.6M in expenses, $23.6M in total assets. 104 publicly reported grants to this organization, totaling roughly $7.1M, appear in IRS filings.
EIN: 272417202
NEW YORK, NY
Specifically Named Diseases
NTEE: G80
Latest filing: 2025
Total Revenue$8.2M
Total Expenses$6.6M
Total Assets$23.6M
Grant Records104
Funding Total$7.1M
Filing Years2020–2025
Where $100 goes at Eb Research Partnership Inc
How Eb Research Partnership Inc divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.
$78
Programs
the work itself
$6
Management
running the organization
$16
Fundraising
raising the next dollar
Inside the $78 for programs
$78
Grants and money awarded for further research
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL SUPPORT
$5,913
For grant recipient's exempt purposes
$1,356,030
GENERAL SUPPORT
$470,553
CULTURE & ARTS
$123,000
GENERAL SUPPORT
$100,000
Showing up to 5 of 104 total records — full history available with membership.
Officers & Directors
DIRECTOR OF PROGRAMS
Allison Bolshagettigan
VICE CHAIRPERSON
Ari Deshe
DIRECTOR
Daniel Deshe
DIRECTOR
Ed Vedder
TREASURER
Emily Kubik
DIRECTOR
Faye Dilgen
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $8.2M | $6.6M | $23.6M |
| 2024 | $5.5M | $7.2M | $22.9M |
| 2023 | $7.4M | $7.7M | $24.7M |
| 2022 | $6.5M | $7.0M | $22.6M |
| 2020 | $4.8M | $4.6M | $16.4M |
Between 2020 and 2025, reported annual revenue grew from $4.8M to $8.2M (+70%), with total assets most recently reported at $23.6M.
Interactive year-over-year charts and full filing details available with membership.