Mission
SEE SCHEDULE O
Public Charity
CYSTIC FIBROSIS FOUNDATION
CYSTIC FIBROSIS FOUNDATION, of BETHESDA, MD, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $355.8M in revenue, $439.1M in expenses, $5.0B in total assets. 984 publicly reported grants to this organization, totaling roughly $70.1M, appear in IRS filings.
EIN: 131930701
BETHESDA, MD
Birth Defects & Genetic Diseases
NTEE: G20
Latest filing: 2024
Total Revenue$355.8M
Total Expenses$439.1M
Total Assets$5.0B
Grant Records984
Funding Total$70.1M
Filing Years2019–2024
Where $100 goes at Cystic Fibrosis Foundation
How Cystic Fibrosis Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$82
Programs
the work itself
$11
Management
running the organization
$7
Fundraising
raising the next dollar
Inside the $82 for programs
$73
Medical Program Expenses
$5
Education Program Expenses
$4
Community Service Program Expenses
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL SUPPORT
$298,340
Mission support
$61,300
MEDICAL
$54,950
$34,500
GENERAL SUPPORT
$31,729
Showing up to 5 of 984 total records — full history available with membership.
Officers & Directors
Chief Medical Officer Beg. 7/1/2024
Albert Faro Md
MANAGING DIRECTOR, INVESTMENTS
Andrew Lewis
Chief Medical Officer Ending 7/1/2024
Bruce Marshall Md
TRUSTEE
Carole B Griego Md
TREASURER
David A Mount
TRUSTEE
Dodzie Sogah Phd
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $355.8M | $439.1M | $5.0B |
| 2023 | $292.0M | $443.4M | $4.9B |
| 2022 | $248.6M | $396.7M | $4.7B |
| 2020 | $800.6M | $381.4M | $5.4B |
| 2019 | $605.8M | $348.7M | $4.5B |
Between 2019 and 2024, reported annual revenue declined from $605.8M to $355.8M (-41%), with total assets most recently reported at $5.0B.
Interactive year-over-year charts and full filing details available with membership.