Mission
THE NATIONAL MPS SOCIETY EXISTS TO CURE, SUPPORT, AND ADVOCATE FOR MUCOPOLYSACCHARIDOSIS (MPS) AND MUCOLIPIDOSIS (ML).
Public Charity
NATIONAL MPS SOCIETY INC
NATIONAL MPS SOCIETY INC, of DURHAM, NC, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $5.6M in revenue, $2.7M in expenses, $6.6M in total assets. 50 publicly reported grants to this organization, totaling roughly $850K, appear in IRS filings.
EIN: 112734849
DURHAM, NC
Latest filing: 2025
Total Revenue$5.6M
Total Expenses$2.7M
Total Assets$6.6M
Grant Records50
Funding Total$850K
Filing Years2021–2025
Where $100 goes at National Mps Society Inc
How National Mps Society Inc divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.
$81
Programs
the work itself
$11
Management
running the organization
$8
Fundraising
raising the next dollar
Inside the $81 for programs
$39
The society provided information services and educational support for affected families (newsletters, syndrome booklets, fact sheets, website, directory) and increased public awareness of these rare genetic diseases (conferences…
$23
The society funded approximately 7 research grants during 2025 for the purpose of finding treatments and cures for mps and related diseases
$19
The National Mps Society provides comprehensive support to families affected by mps and ml through its family support and pathways programs
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
PHASE II OF THE MPS AIRWAY PROJECT, PUBLICATION PHASE OF INTERNATIONAL CONSENSUS GUIDELINES ON AIRWAY MANAGEMENT.
$31,931
GENERAL SUPPORT
$10,672
GENERAL SUPPORT
$10,000
For grant recipient's exempt purposes
$54,700
GENERAL SUPPORT
$34,565
Showing up to 5 of 50 total records — full history available with membership.
Officers & Directors
TREASURER
Carl Kapes
DIRECTOR
Colleen Kraft
DIRECTOR
Jason Madison
DIRECTOR
Lisa Berry
CSO
Matthew Ellinwood
VICE CHAIRMA
Maureen Cote
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $5.6M | $2.7M | $6.6M |
| 2024 | $2.1M | $2.5M | $3.9M |
| 2023 | $2.3M | $2.8M | $4.0M |
| 2022 | $1.8M | $2.7M | $4.5M |
| 2021 | $1.9M | $2.1M | $5.4M |
Between 2021 and 2025, reported annual revenue grew from $1.9M to $5.6M (+192%), with total assets most recently reported at $6.6M.
Interactive year-over-year charts and full filing details available with membership.