Small Public Charity

CURE CDKL5 EPILEPSY FOUNDATION

CURE CDKL5 EPILEPSY FOUNDATION is a nonprofit organization categorized as Small Public Charity based in New York, NY. Its most recent IRS filing (2024) reports revenue of $192K, expenses of $14K, total assets of $178K. Imperigo tracks 4 reported grant relationships connected to this organization totaling approximately $89K.

EIN: 991303165 New York, NY Epilepsy NTEE: G54 Latest filing: 2024
Total Revenue$192K
Total Expenses$14K
Total Assets$178K
Grant Records4
Funding Total$89K
Filing Years2023–2024

Mission

Cure CDKL5 Epilepsy Foundation's mission is to find a cure for children suffering from CDKL5 Deficiency Disorder and improve the qualtiy of life for them and their families. We will provide financial grants and payments to advance science and research to the academic, biopharma, scientific and medical community to pursue our mission. CDKL5 is a rare developmental epileptic encephalophathy caused by mutations in the CDKL5 gene, and this can manifest in a broad range of clinical symptoms and severity.

Where $100 goes at Cure Cdkl5 Epilepsy Foundation

How Cure Cdkl5 Epilepsy Foundation divides every $100 it spends, from its own Form 990-EZ filings, averaged across 2 years.

$100 Programs the work itself
<$1 Everything else operations and overhead

Form 990-EZ reports program spending but doesn't separate management from fundraising, so those are shown together.

Inside the $100 for programs

$100
In 2024, CURE5 raised $192k to advance research and therapeutic development for CDKL5 Deficiency Disorder
All program spending
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Source: Form 990-EZ filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

President Andreas Borg
Treasurer Aurelie Hasse
Secretary Camille Ranadive

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$89,191 3 grants

Financial Trends

Year Revenue Expenses Assets
2024 $192K $14K $178K
2023 — — —

Interactive year-over-year charts and full filing details available with membership.

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