Public Charity

DYSTONIA MEDICAL RESEARCH FOUNDATION

DYSTONIA MEDICAL RESEARCH FOUNDATION, of CHICAGO, IL, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $3.2M in revenue, $3.0M in expenses, $6.4M in total assets. 76 publicly reported grants to this organization, totaling roughly $3.8M, appear in IRS filings.

EIN: 953378526 CHICAGO, IL Latest filing: 2024
Total Revenue$3.2M
Total Expenses$3.0M
Total Assets$6.4M
Grant Records76
Funding Total$3.8M
Filing Years2020–2024

Mission

THE FOUNDATION HAS THREE MAIN PURPOSES: (1)TO ADVANCE DYSTONIA RESEARCH BY AWARDING GRANTS TO BASIC, TRANSLATIONAL, AND CLINICAL INVESTIGATORS AND TO MEDICAL/SCIENTIFIC INSTITUTIONS COMMITTED TO FINDING THE CAUSE AND CURE FOR ALL FORMS OF DYSTONIA; (2)TO PROMOTE DYSTONIA AWARENESS BY SPONSORING WORKSHOPS AND SYMPOSIUMS FOR MEDICAL PROFESSIONALS AND PATIENTS, BY EDUCATING MEMBERS OF CONGRESS ABOUT DYSTONIA AND THE NEEDS OF THE DYSTONIA COMMUNITY, BY ADVOCATING FOR THOSE AFFECTED BY DYSTONIA AND THEIR FAMILIES, AND BY PRODUCING AND DISTRIBUTING EDUCATIONAL MATERIALS, BOTH PRINTED AND ELECTRONIC; AND (3)TO SPONSOR DYSTONIA PATIENT AND FAMILY SUPPORT GROUPS AND EDUCATION PROGRAMS INCLUDING THE CREATION AND PROMOTION OF VIRTUAL EDUCATION MEETINGS AND ELECTRONIC SOCIAL NETWORKS FOR DYSTONIA-AFFECTED PERSONS AND FAMILIES WHO ARE UNABLE TO ATTEND MEETINGS.

Officers & Directors

Director Allison London
Director Art Kessler
Vice President Barbara Kessler
Director Bill Mclaughlin
Director Brian Keane
Vice President Carole Rawson

Officer compensation and complete director data available with membership.

Top Grant Purposes

RESEARCH/SUBCONTRACT
$1,588,999 5 grants
For grant recipient's exempt purposes
$406,631 9 grants
HEALTH
$322,860 12 grants
PERFORM RESEARCH FOR MORE TREATMENTS AND ULTIMATELY A CURE FOR DYSTONIA.
$306,900 4 grants
GENERAL SUPPORT
$224,424 12 grants

Financial Trends

Year Revenue Expenses Assets
2024 $3.2M $3.0M $6.4M
2023 $3.0M $3.4M $6.4M
2022 $2.6M $2.5M $6.3M
2021 $2.9M $2.5M $6.9M
2020 $2.5M $2.3M $6.1M

Between 2020 and 2024, reported annual revenue grew from $2.5M to $3.2M (+28%), with total assets most recently reported at $6.4M.

Interactive year-over-year charts and full filing details available with membership.

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