Public Charity

EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION

EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION, of LOS ANGELES, CA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $889K in revenue, $401K in expenses, $4.2M in total assets. 27 publicly reported grants to this organization, totaling roughly $537K, appear in IRS filings.

EIN: 943130081 LOS ANGELES, CA Latest filing: 2024
Total Revenue$889K
Total Expenses$401K
Total Assets$4.2M
Grant Records27
Funding Total$537K
Filing Years2020–2024

Mission

THE PRIMARY PURPOSE OF THE ORGANIZATION IS TO FUND MEDICAL RESEARCH TO FIND A CURE FOR EPIDERMOLYSIS BULLOSA. EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION FUNDS VARIOUS RESEARCH ORGANIZATIONS ACROSS THE UNITED STATES & INTERNATIONALLY FOR CHILDREN'S HEALTH.

Officers & Directors

PRESIDENT/EXECUTIVE DIRECTOR Andrea Pett-Joseph
FOUNDER, PRESIDENT EMERITUS Lynn Anderson
DIRECTOR Marc Gurvitz
CHIEF FINANCIAL OFFICER Paul Joseph
DIRECTOR Persia Fardad-Finn

Officer compensation and complete director data available with membership.

Top Grant Purposes

HEALTH
$210,300 10 grants
UNRESTRICTED GENERAL SUPPORT
$124,500 6 grants
For grant recipient's exempt purposes
$83,760 3 grants
$40K FOR ROCK4EB, REST FOR GENERAL FUNDS
$51,995 1 grant
Health
$25,000 2 grants

Financial Trends

Year Revenue Expenses Assets
2024 $889K $401K $4.2M
2023 $1.4M $346K $3.9M
2022 $390K $225K $3.8M
2021 $773K $1.5M $3.9M
2020 $1.5M $1.1M $4.6M

Between 2020 and 2024, reported annual revenue declined from $1.5M to $889K (-40%), with total assets most recently reported at $4.2M.

Interactive year-over-year charts and full filing details available with membership.

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