Public Charity

HYDROCEPHALUS ASSOCIATION

HYDROCEPHALUS ASSOCIATION, of NORTH BETHESDA, MD, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $4.4M in revenue, $3.8M in expenses, $4.4M in total assets. 62 publicly reported grants to this organization, totaling roughly $2.5M, appear in IRS filings.

EIN: 943000301 NORTH BETHESDA, MD Brain Disorders NTEE: G48 Latest filing: 2025
Total Revenue$4.4M
Total Expenses$3.8M
Total Assets$4.4M
Grant Records62
Funding Total$2.5M
Filing Years2021–2025

Mission

FIND A CURE FOR HYROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED. WE WILL ACCOMPLISH THIS BY COLLABORATING WITH PATIENTS, CAREGIVERS, RESEARCHERS AND INDUSTRY, RAISING AWARENESS, AND FUNDING INNOVATIVE, HIGH-IMPACT RESEARCH TO PREVENT, TREAT AND CURE HYDROCEPHALUS.

Where $100 goes at Hydrocephalus Association

How Hydrocephalus Association divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.

$79 Programs the work itself
$15 Management running the organization
$6 Fundraising raising the next dollar

Inside the $79 for programs

$40
Support and education the Hydrocephalus Association is deeply committed to improving the lives of those affected by hydrocephalus by providing direct support as well as educational resources in…
51% of program spending · Reported in the filing: 265 scholarships; 13 scholarships
$33
Researchthe Hydrocephalus Association (ha) is dedicated to advancing high-quality research
41% of program spending
$3
Advocacy the Hydrocephalus Association advocacy committee has continued to monitor and support key legislation that will benefit the hydrocephalus community
4% of program spending

Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.

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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

CHIEF OPERATING OFFICER Amanda Garzon
TREASURER AND CFO Brian Saphier
DIRECTOR David Limbrick Md
DIRECTOR Deitra Matthews Mpa
PRESIDENT AND CEO Diana Gray
FINANCE COMMITTEE CHAIR Hugh Allen

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$1,955,983 44 grants
Research & Policy
$310,000 2 grants
Health & Medicine
$182,012 9 grants
Training & Professional Development
$30,000 1 grant
Fundraising & Sponsorship
$10,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $4.4M $3.8M $4.4M
2024 $3.6M $4.4M $3.5M
2023 $3.6M $3.6M $4.4M
2022 $4.1M $3.6M $4.5M
2021 $3.9M $2.7M $3.8M

Between 2021 and 2025, reported annual revenue grew from $3.9M to $4.4M (+12%), with total assets most recently reported at $4.4M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for HYDROCEPHALUS ASSOCIATION

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