Mission
MOBILIZE RESOURCES, FACILITATE CONNECTIONS, PROMOTING UNITY, AND ADVOCATING FOR A CURE TO INSPIRE, EMPOWER, AND ENRICH THE LIVES OF PEOPLE LIVING WITH ALAGILLE SYNDROME.
Public Charity
ALAGILLE SYNDROME ALLIANCE
ALAGILLE SYNDROME ALLIANCE is a nonprofit organization categorized as Public Charity based in WASHINGTON, DC. Its most recent IRS filing (2025) reports revenue of $1.2M, expenses of $1.1M, total assets of $700K. Imperigo tracks 20 reported grant relationships connected to this organization totaling approximately $535K.
EIN: 931243619
WASHINGTON, DC
Eye Diseases, Blindness & Vision Impairments Research
NTEE: H41
Latest filing: 2025
Total Revenue$1.2M
Total Expenses$1.1M
Total Assets$700K
Grant Records20
Funding Total$535K
Filing Years2021–2025
Where $100 goes at Alagille Syndrome Alliance
How Alagille Syndrome Alliance divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.
$71
Programs
the work itself
$21
Management
running the organization
$8
Fundraising
raising the next dollar
Inside the $71 for programs
$38
Various other programs
$23
Algsa scientific research network
$10
Algsa jr
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
Operating Support/Annual Fund
$100,000
For grant recipient's exempt purposes
$42,000
GENERAL SUPPORT
$10,332
GENERAL SUPPORT
$6,131
GENERAL SUPPORT
$6,131
Showing up to 5 of 20 total records — full history available with membership.
Officers & Directors
CHAIRMAN
Julia Bird
DIRECTOR
Mike Larosa
PRESIDENT
Roberta Smith
DIRECTOR
Sean Kelly
DIRECTOR
Shamy Ravishankar
TREASURER
Todd Allen
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $1.2M | $1.1M | $700K |
| 2024 | $648K | $513K | $640K |
| 2023 | $572K | $540K | $502K |
| 2022 | $585K | $555K | $469K |
| 2021 | $414K | $277K | $437K |
Between 2021 and 2025, reported annual revenue grew from $414K to $1.2M (+181%), with total assets most recently reported at $700K.
Interactive year-over-year charts and full filing details available with membership.