Public Charity

ALAGILLE SYNDROME ALLIANCE

ALAGILLE SYNDROME ALLIANCE is a nonprofit organization categorized as Public Charity based in WASHINGTON, DC. Its most recent IRS filing (2024) reports revenue of $648K, expenses of $513K, total assets of $640K. Imperigo tracks 18 reported grant relationships connected to this organization totaling approximately $429K.

EIN: 931243619 WASHINGTON, DC Latest filing: 2024
Total Revenue$648K
Total Expenses$513K
Total Assets$640K
Grant Records18
Funding Total$429K
Filing Years2020–2024

Mission

MOBILIZE RESOURCES, FACILITATE CONNECTIONS, PROMOTING UNITY, AND ADVOCATING FOR A CURE TO INSPIRE, EMPOWER, AND ENRICH THE LIVES OF PEOPLE LIVING WITH ALAGILLE SYNDROME.

Officers & Directors

CHAIRMAN Julia Bird
DIRECTOR Mike Larosa
PRESIDENT Roberta Smith
DIRECTOR Sean Kelly
DIRECTOR Shamy Ravishankar
TREASURER Todd Allen

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$267,700 7 grants
HEALTH
$60,650 3 grants
Medical Research
$50,000 2 grants
GENERAL SUPPORT
$27,506 4 grants
Festival of Children Foundation
$16,998 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $648K $513K $640K
2023 $572K $540K $502K
2022 $585K $555K $469K
2021 $414K $277K $437K
2020 $258K $234K $287K

Between 2020 and 2024, reported annual revenue grew from $258K to $648K (+151%), with total assets most recently reported at $640K.

Interactive year-over-year charts and full filing details available with membership.

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