Mission
OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.
Public Charity
BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION
BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION, of GAHANNA, OH, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $602K in revenue, $967K in expenses, $966K in total assets. 29 publicly reported grants to this organization, totaling roughly $919K, appear in IRS filings.
EIN: 911397792
GAHANNA, OH
Latest filing: 2024
Total Revenue$602K
Total Expenses$967K
Total Assets$966K
Grant Records29
Funding Total$919K
Filing Years2020–2024
Sample Grants Received
RESEARCH AND TRIALS TOWARD THE ULTIMATE GOAL OF IRRADICATING BATTEN DISEASE
$20,314
UNRESTRICTED GENERAL SUPPORT
$15,000
TO FUND RESEARCH FOR A CURE FOR AND TO PROMOTE AWARENESS OF BATTEN DISEASE.
$8,913
GENERAL SUPPORT
$8,369
For grant recipient's exempt purposes
$6,700
Showing up to 5 of 29 total records — full history available with membership.
Officers & Directors
PRESIDENT &
Amy Fenton Parker
DIRECTOR
Anthony Ferrandino
SECRETARY
Barbara Mcdonough
BOARD VICE C
Barbara Wuebbels
BOARD CHAIR
Darlene Royalty
DIRECTOR
Dave Pearce
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $602K | $967K | $966K |
| 2023 | $746K | $952K | $1.2M |
| 2022 | $1.1M | $858K | $1.3M |
| 2021 | $875K | $669K | $1.2M |
| 2020 | $1.2M | $718K | $1.0M |
Between 2020 and 2024, reported annual revenue declined from $1.2M to $602K (-51%), with total assets most recently reported at $966K.
Interactive year-over-year charts and full filing details available with membership.