Mission
TO IMPROVE THE LIVES OF EVERYONE IMPACTED BY HUNTINGTON'S DISEASE BY PROVIDING SUPPORT, DRIVING ADVOCACY, AND ACCELERATING RESEARCH.
Public Charity
HUNTINGTON'S DISEASE SOCIETY OF AMERICA GROUP
HUNTINGTON'S DISEASE SOCIETY OF AMERICA GROUP, of NEW YORK, NY, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $3.7M in revenue, $3.5M in expenses, $867K in total assets. 4 publicly reported grants to this organization, totaling roughly $48K, appear in IRS filings.
EIN: 900658125
NEW YORK, NY
Latest filing: 2025
Total Revenue$3.7M
Total Expenses$3.5M
Total Assets$867K
Grant Records4
Funding Total$48K
Filing Years2021–2025
Where $100 goes at Huntington's Disease Society of America Group
How Huntington's Disease Society of America Group divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$92
Programs
the work itself
<$1
Management
running the organization
$8
Fundraising
raising the next dollar
Inside the $92 for programs
$77
Research
$12
Patient and family services
$3
Community outreach
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
TO FURTHER THE ORGANIZATION'S EXEMPT PURPOSE
$10,000
GENERAL SUPPORT
$17,542
Donation for Huntington's Disease Society Gala
$10,000
RESEARCH IN DELAWARE REGION
$10,000
Showing up to 5 of 4 total records — full history available with membership.
Officers & Directors
TRUSTEE
Amber Southwell Phd
CHIEF EXECUTIVE OFFICER
Amy Gray
CHAIR ELECT
Angela Allen
CHIEF MISSION OFFICER
Arik Johnson
TRUSTEE
Beth Hoffman
TREASURER
Christopher Decesaris
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $3.7M | $3.5M | $867K |
| 2024 | $3.2M | $3.5M | $611K |
| 2023 | $3.3M | $3.0M | $890K |
| 2022 | $3.6M | $3.7M | $740K |
| 2021 | $2.9M | $2.9M | $786K |
Between 2021 and 2025, reported annual revenue grew from $2.9M to $3.7M (+31%), with total assets most recently reported at $867K.
Interactive year-over-year charts and full filing details available with membership.