Mission
HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. IS A HEALTH AND WELFARE ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES
Public Charity
HUNTINGTON'S DISEASE SOCIETY OF AMERICA GROUP
HUNTINGTON'S DISEASE SOCIETY OF AMERICA GROUP, of NEW YORK, NY, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $3.2M in revenue, $3.5M in expenses, $611K in total assets. 4 publicly reported grants to this organization, totaling roughly $48K, appear in IRS filings.
EIN: 900658125
NEW YORK, NY
Latest filing: 2024
Total Revenue$3.2M
Total Expenses$3.5M
Total Assets$611K
Grant Records4
Funding Total$48K
Filing Years2020–2024
Sample Grants Received
TO FURTHER THE ORGANIZATION'S EXEMPT PURPOSE
$10,000
GENERAL SUPPORT
$17,542
Donation for Huntington's Disease Society Gala
$10,000
RESEARCH IN DELAWARE REGION
$10,000
Showing up to 5 of 4 total records — full history available with membership.
Officers & Directors
TRUSTEE
Amber Southwell Phd
TREASURER
Angela Allen
CHIEF MISSION OFFICER
Arik Johnson
TRUSTEE
Beth Hoffman
TRUSTEE
Christopher Decesaris
REGIONAL DEVELOPMENT DIRECTOR
Deborah Boyd
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $3.2M | $3.5M | $611K |
| 2023 | $3.3M | $3.0M | $890K |
| 2022 | $3.6M | $3.7M | $740K |
| 2021 | $2.9M | $2.9M | $786K |
| 2020 | $1.9M | $2.1M | $823K |
Between 2020 and 2024, reported annual revenue grew from $1.9M to $3.2M (+66%), with total assets most recently reported at $611K.
Interactive year-over-year charts and full filing details available with membership.