Public Charity

DLG4 SHINE Foundation Inc

Based in Dayton, OH, DLG4 SHINE Foundation Inc operates as a Public Charity. The organization reported $380K in revenue, $188K in expenses for fiscal year 2025. Imperigo tracks 1 reported grant relationships connected to this organization totaling approximately $11K.

EIN: 874703593 Dayton, OH Birth Defects & Genetic Diseases NTEE: G20 Latest filing: 2025
Total Revenue$380K
Total Expenses$188K
Grant Records1
Funding Total$11K
Filing Years2022–2025

Mission

Our mission is to improve the lives of individuals with DLG4-related Synaptopathy by supporting research, developing treatments and therapies, and providing a community of support. We understand the challenges that families face when dealing with this rare disease, and we are committed to making a difference. By collaborating with researchers, healthcare professionals, and other organizations, we aim to accelerate medical advances focused on the treatment of DLG4 Synaptopathy.

Where $100 goes at DLG4 SHINE Foundation Inc

How DLG4 SHINE Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 4 years.

$100 Programs the work itself
<$1 Management running the organization
$0 Fundraising none reported

No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.

Inside the $100 for programs

$64
Research Asset Development (iPSC, Mouse, and Rat Development)
64% of program spending
$36
2025 DLG4 SHINE Research & Family Conference
36% of program spending
<$1
Medical Considerations Documents sent to members who are affected by DLG4 SHINE syndrome
0% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Secretary Courtney Roche
Director of Marketing Dana Opar
Director of Fundraising Danielle Shiv
Ethics Officer Jessica Crews
co-President Marie-France Gervais
Treasurer Melanie Queen

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$11,085 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $380K $188K —
2024 $122K $30K $126K
2023 $84K $149K $34K
2022 $108K $9K $99K

Between 2022 and 2025, reported annual revenue grew from $108K to $380K (+252%).

Interactive year-over-year charts and full filing details available with membership.

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