Mission
The United Porphyrias Association is committed to improving the quality of life of the porphyria patient community and is relentlessly focused on advancing disease awareness, research, and therapies in all the porphyrias.
Public Charity
UNITED PORPHYRIAS ASSOCIATION INC
UNITED PORPHYRIAS ASSOCIATION INC is a Public Charity headquartered in BETHESDA, MD. Financial data from the 2024 filing: $458K revenue, $255K expenses, $1.2M total assets. 4 publicly reported grants to this organization, totaling roughly $858K, appear in IRS filings.
EIN: 874143089
BETHESDA, MD
Latest filing: 2024
Total Revenue$458K
Total Expenses$255K
Total Assets$1.2M
Grant Records4
Funding Total$858K
Filing Years2023–2024
Sample Grants Received
$800,000
For grant recipient's exempt purposes
$25,000
GENERAL SUPPORT
$7,665
For grant recipient's exempt purposes
$25,000
Showing up to 5 of 4 total records — full history available with membership.
Officers & Directors
Chairman
Andrew L Turell
Director
Ariel Lager
Secretary
Hetanshi Naik Phd Ms Cgc
Director
Hon Joseph Crowley
President
Kristen Wheeden
Director
Robert J Desnick Phd Md
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $458K | $255K | $1.2M |
| 2023 | $624K | $108K | $531K |
Between 2023 and 2024, reported annual revenue declined from $624K to $458K (-27%), with total assets most recently reported at $1.2M.
Interactive year-over-year charts and full filing details available with membership.