Public Charity

Finding Hope for FRRS1L

Finding Hope for FRRS1L is a nonprofit organization categorized as Public Charity based in Fort Collins, CO. Its most recent IRS filing (2026) reports revenue of $2.5M, expenses of $2.4M, total assets of $1.4M. Imperigo tracks 9 reported grant relationships connected to this organization totaling approximately $796K.

EIN: 873285525 Fort Collins, CO Birth Defects & Genetic Diseases Research NTEE: H20 Latest filing: 2026
Total Revenue$2.5M
Total Expenses$2.4M
Total Assets$1.4M
Grant Records9
Funding Total$796K
Filing Years2022–2026

Mission

FIND a Community : Create a community of Hope for FRRS1L gene disorder children and families to connect communicate collaborate and support one another. HOPE for a Cure: Serve to fund the research and development of gene therapy replacement treatment that has been proven in research to bring FRRS1L mouse back to function. FRRS1L awareness: Share information and resources with the public medical professionals and researchers to increase the awareness and understanding of FRRS1L.

Where $100 goes at Finding Hope for FRRS1L

How Finding Hope for FRRS1L divides every $100 it spends, from its own Form 990 filings, averaged across 3 years.

$99 Programs the work itself
<$1 Management running the organization
$1 Fundraising raising the next dollar

Inside the $99 for programs

$99
Serve to fund the research and development of gene therapy replacement treatment that has been proven in research to bring FRRS1L mouse back to function
100% of program spending
<$1
Share information and resources with the public medical professionals and researchers to increase the awareness and understanding of FRRS1L
0% of program spending
<$1
Create a community of Hope for FRRS1L gene disorder children and families to connect communicate collaborate and support one another
0% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2026. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Director Arturo Alonso
President Christine Green
Director Lindsay Ullman
Director Matthew Nisley
Secretary Stephen Green
Vice President Viviana Rodriguez

Officer compensation and complete director data available with membership.

Top Grant Purposes

Research & Policy
$422,467 1 grant
General Support
$345,633 5 grants
Health & Medicine
$27,900 1 grant

Financial Trends

Year Revenue Expenses Assets
2026 $2.5M $2.4M $1.4M
2025 $1.3M $201K $1.2M
2022 $66K $45 $66K

Between 2022 and 2026, reported annual revenue grew from $66K to $2.5M (+3762%), with total assets most recently reported at $1.4M.

Interactive year-over-year charts and full filing details available with membership.

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