Mission
FIND a Community : Create a community of Hope for FRRS1L gene disorder children and families to connect communicate collaborate and support one another. HOPE for a Cure: Serve to fund the research and development of gene therapy replacement treatment that has been proven in research to bring FRRS1L mouse back to function. FRRS1L awareness: Share information and resources with the public medical professionals and researchers to increase the awareness and understanding of FRRS1L.