Mission
The Coalition to Cure CHD2 (CCC)'s mission is to improve the lives of those affected by CHD2-related disorders by increasing education, building a community, and accelerating research to uncover a cure.
Public Charity
COALITION TO CURE CHD2 INC
Based in NAPERVILLE, IL, COALITION TO CURE CHD2 INC operates as a Public Charity. The organization reported $401K in revenue, $363K in expenses, $363K in total assets for fiscal year 2025. Imperigo tracks 4 reported grant relationships connected to this organization totaling approximately $30K.
EIN: 854057370
NAPERVILLE, IL
Fund Raising & Fund Distribution
NTEE: H12
Latest filing: 2025
Total Revenue$401K
Total Expenses$363K
Total Assets$363K
Grant Records4
Funding Total$30K
Filing Years2022–2025
Where $100 goes at Coalition to Cure Chd2 Inc
How Coalition to Cure Chd2 Inc divides every $100 it spends, from its own Form 990 filings, averaged across 4 years.
$69
Programs
the work itself
$17
Management
running the organization
$14
Fundraising
raising the next dollar
Inside the $69 for programs
$32
Grant to Kasri Lab for scientific research related to testing therapeutics
$32
The Coalition to Cure Chd2 hosted the CHD2 Family & Scientific Conference in Westminster, Colorado, from June 13-15, 2025
$4
Other science related collaboration and travel, such as attendance at the American Epilepsy Society conference
Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
For grant recipient's exempt purposes
$9,500
For grant recipient's exempt purposes
$8,500
$7,000
GENERAL SUPPORT
$5,395
Showing up to 5 of 4 total records — full history available with membership.
Officers & Directors
Director
Carolyn Aronson
Treasurer and Director
Christopher Huff
Board Member
Dean Aguiar
Board Member
Justin Schueler
Executive Director
Laura Marks
Board Member
Madison Wharton
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $401K | $363K | $363K |
| 2024 | $250K | $162K | $270K |
| 2023 | $162K | $97K | $221K |
| 2022 | $193K | $85K | $156K |
Between 2022 and 2025, reported annual revenue grew from $193K to $401K (+107%), with total assets most recently reported at $363K.
Interactive year-over-year charts and full filing details available with membership.