Public Charity

CACNA1A Foundation

Based in Norwalk, CT, CACNA1A Foundation operates as a Public Charity. The organization reported $710K in revenue, $390K in expenses, $1.0M in total assets for fiscal year 2025. Imperigo tracks 23 reported grant relationships connected to this organization totaling approximately $486K.

EIN: 844985747 Norwalk, CT Birth Defects & Genetic Diseases NTEE: G20 Latest filing: 2025
Total Revenue$710K
Total Expenses$390K
Total Assets$1.0M
Grant Records23
Funding Total$486K
Filing Years2021–2025

Mission

To find specific treatment options and a cure for CACNA1A patients. (See Schedule O for full mission)

Officers & Directors

Director Allison Buchner
Secretary Amy Junge
Director Brandon Farley Phd
Director Casey Dawley
Director Deborah Ondrasik Md
Director Hala Mirza

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$171,500 6 grants
UNRESTRICTED
$134,031 3 grants
GENERAL SUPPORT
$66,632 7 grants
FOR RECIPIENT'S EXEMPT PURPOSE
$66,000 2 grants
COMMUNITY & HUMAN SERVICES
$27,500 3 grants

Financial Trends

Year Revenue Expenses Assets
2025 $710K $390K $1.0M
2024 $466K $540K $726K
2023 $386K $454K $863K
2022 $343K $403K $877K
2021 $485K $169K $488K

Between 2021 and 2025, reported annual revenue grew from $485K to $710K (+47%), with total assets most recently reported at $1.0M.

Interactive year-over-year charts and full filing details available with membership.

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