Small Public Charity

NEUROACANTHOCYTOSIS ADVOCACY USA INCORPORATED

NEUROACANTHOCYTOSIS ADVOCACY USA INCORPORATED is a nonprofit organization categorized as Small Public Charity based in MELBOURNE, FL. Its most recent IRS filing (2025) reports revenue of $65K, expenses of $57K, total assets of $96K. Imperigo tracks 7 reported grant relationships connected to this organization totaling approximately $85K.

EIN: 843711526 MELBOURNE, FL Latest filing: 2025
Total Revenue$65K
Total Expenses$57K
Total Assets$96K
Grant Records7
Funding Total$85K
Filing Years2021–2025

Mission

The primary purpose of this corporation is to operate exclusively for charitable purposes and in furtherance of such goals is authorized to do any or all activities which it is empowered to do under the Articles of Incorporation and Florida law. No activities will be allowed which would jeopardize the corporations tax-exempt status or otherwise be inconsistent with its classification as an organization described in sections 501 c3 of the Internal Revenue Code.The specific purposes of the corporation is to support patients with neuroacanthocytosis-related diseases and their caregivers to promote awareness of neuroacanthocytosis-related diseases and to support research aimed at alleviation of said diseases.

Sample Grants Received

2023
For grant recipient's exempt purposes
$10,750
2023
UNRESTRICTED
$5,252
2022
For grant recipient's exempt purposes
$10,000
2021
For grant recipient's exempt purposes
$14,000
2021
For grant recipient's exempt purposes
$14,000

Showing up to 5 of 7 total records — full history available with membership.

Officers & Directors

Director Dave Asinger
President Joyce Willard-Williford
Secretary Julie Kerner
Director Kimberly Thomson
Treasurer Robert Metzger
Director Ruth Walker

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$73,750 5 grants
UNRESTRICTED
$11,209 2 grants

Financial Trends

Year Revenue Expenses Assets
2025 $65K $57K $96K
2024 $83K $63K $88K
2023 $41K $18K $68K
2022 $48K $32K $45K
2021 $115K $98K $29K

Between 2021 and 2025, reported annual revenue declined from $115K to $65K (-44%), with total assets most recently reported at $96K.

Interactive year-over-year charts and full filing details available with membership.

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