Public Charity

PULMONARY FIBROSIS FOUNDATION

PULMONARY FIBROSIS FOUNDATION is a Public Charity headquartered in CHICAGO, IL. Financial data from the 2025 filing: $9.3M revenue, $7.4M expenses, $17.5M total assets. 130 publicly reported grants to this organization, totaling roughly $4.8M, appear in IRS filings.

EIN: 841558631 CHICAGO, IL Lung Diseases NTEE: G45 Latest filing: 2025
Total Revenue$9.3M
Total Expenses$7.4M
Total Assets$17.5M
Grant Records130
Funding Total$4.8M
Filing Years2021–2025

Mission

THE PULMONARY FIBROSIS FOUNDATION IS COMMITTED TO ACCELERATING RESEARCH, EMPOWERING OUR COMMUNITY, AND TRANSFORMING CARE SO THAT EVERYONE WITH PULMONARY FIBROSIS CAN LIVE A BETTER LIFE. OUR ULTIMATE GOAL IS TO FIND A CURE FOR PULMONARY FIBROSIS.

Where $100 goes at Pulmonary Fibrosis Foundation

How Pulmonary Fibrosis Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.

$74 Programs the work itself
$13 Management running the organization
$13 Fundraising raising the next dollar

Inside the $74 for programs

$32
Outreach and awareness:the pff ambassador program empowers patients, caregivers, lung transplant recipients, family members, and those who have lost a loved one to serve as spokespeople for the…
43% of program spending · Reported in the filing: 52 individuals
$17
Pff registry
22% of program spending · Reported in the filing: 3,000 individuals
$11
Education
15% of program spending · Reported in the filing: 1,500 attendees

Plus 2 more programs. Cost per person served and the full program breakdown are on the full profile.

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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

VP, DEVELOPMENT Amy Wardzala
DIRECTOR David Mcninch
DIRECTOR Devi Kumar-Nambiar Jd Mba
FORMER PRESIDENT & CEO Franck Rahaghi
DIRECTOR Grant Ballantyne
DIRECTOR Harold R Collard Md

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$2,802,758 72 grants
Health & Medicine
$1,154,460 38 grants
Research & Policy
$365,243 6 grants
Education
$170,000 4 grants
Human & Social Services
$50,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $9.3M $7.4M $17.5M
2024 $8.3M $9.0M $15.3M
2023 $11.8M $10.3M $16.8M
2022 $11.0M $9.7M $17.1M
2021 $9.0M $8.3M $14.7M

Between 2021 and 2025, reported annual revenue grew from $9.0M to $9.3M (+3%), with total assets most recently reported at $17.5M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for PULMONARY FIBROSIS FOUNDATION

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