Mission
TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES
Public Charity
RARE VILLAGE FOUNDATION
RARE VILLAGE FOUNDATION is a Public Charity headquartered in MCKINNEY, TX. Financial data from the 2025 filing: $3.7M revenue, $2.4M expenses, $3.3M total assets. 47 publicly reported grants to this organization, totaling roughly $2.8M, appear in IRS filings.
EIN: 834699994
MCKINNEY, TX
Fund Raising & Fund Distribution
NTEE: H12
Latest filing: 2025
Total Revenue$3.7M
Total Expenses$2.4M
Total Assets$3.3M
Grant Records47
Funding Total$2.8M
Filing Years2021–2025
Where $100 goes at Rare Village Foundation
How Rare Village Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 6 years.
$96
Programs
the work itself
$2
Management
running the organization
$2
Fundraising
raising the next dollar
Inside the $96 for programs
$96
Donated millions dollars to research initiatives
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
HUMAN SERVICES
$20,000
General Support
$8,000
GENERAL SUPPORT
$6,531
GENERAL SUPPORT
$130,720
GENERAL SUPPORT
$130,720
Showing up to 5 of 47 total records — full history available with membership.
Officers & Directors
DIRECTOR
Amber Freed
TREASURER DIRECTOR
Amy Sowell
VICE PRESIDENT SECRETARY DIRECTOR
Gina Hann
PRESIDENT DIRECTOR
Kasey Wolleben
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $3.7M | $2.4M | $3.3M |
| 2024 | $3.5M | $3.1M | $2.0M |
| 2023 | $2.6M | $2.1M | $1.7M |
| 2022 | $1.4M | $1.1M | $1.2M |
| 2021 | $2.3M | $1.4M | $959K |
Between 2021 and 2025, reported annual revenue grew from $2.3M to $3.7M (+58%), with total assets most recently reported at $3.3M.
Interactive year-over-year charts and full filing details available with membership.