Mission
TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES
Public Charity
RARE VILLAGE FOUNDATION
RARE VILLAGE FOUNDATION is a Public Charity headquartered in MCKINNEY, TX. Financial data from the 2025 filing: $3.7M revenue, $2.4M expenses, $3.3M total assets. 41 publicly reported grants to this organization, totaling roughly $2.6M, appear in IRS filings.
EIN: 834699994
MCKINNEY, TX
Latest filing: 2025
Total Revenue$3.7M
Total Expenses$2.4M
Total Assets$3.3M
Grant Records41
Funding Total$2.6M
Filing Years2021–2025
Sample Grants Received
GENERAL SUPPORT
$130,720
CHARITABLE DONATION
$51,308
$47,400
For grant recipient's exempt purposes
$37,430
MEDICAL RESEARCH
$30,000
Showing up to 5 of 41 total records — full history available with membership.
Officers & Directors
DIRECTOR
Amber Freed
TREASURER DIRECTOR
Amy Sowell
VICE PRESIDENT SECRETARY DIRECTOR
Gina Hann
PRESIDENT DIRECTOR
Kasey Wolleben
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $3.7M | $2.4M | $3.3M |
| 2024 | $3.5M | $3.1M | $2.0M |
| 2023 | $2.6M | $2.1M | $1.7M |
| 2022 | $1.4M | $1.1M | $1.2M |
| 2021 | $2.3M | $1.4M | $959K |
Between 2021 and 2025, reported annual revenue grew from $2.3M to $3.7M (+58%), with total assets most recently reported at $3.3M.
Interactive year-over-year charts and full filing details available with membership.