Public Charity

MYHRE SYNDROME FOUNDATION

Based in RICHARDSON, TX, MYHRE SYNDROME FOUNDATION operates as a Public Charity. The organization reported $1.7M in revenue, $567K in expenses, $2.0M in total assets for fiscal year 2025. Imperigo tracks 6 reported grant relationships connected to this organization totaling approximately $2.2M.

EIN: 834086943 RICHARDSON, TX Latest filing: 2025
Total Revenue$1.7M
Total Expenses$567K
Total Assets$2.0M
Grant Records6
Funding Total$2.2M
Filing Years2020–2025

Mission

Myhre Syndrome Foundation is a Funding research and patient advocacy organization dedicated providing hope and improving the lives of those impacted by Myhre syndrome.

Officers & Directors

Chief Scientific Officer Armelle Pindon
Director Betsy Cox
Vice President Don Clark
President Ines White
Director Jessica Simkins
Treasurer Justin Smith

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$2,175,900 2 grants
GENERAL SUPPORT
$17,167 2 grants
HEALTH EQUITY GRANT
$14,865 1 grant
HEALTH
$10,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $1.7M $567K $2.0M
2024 $854K $103K $882K
2023 $136K $60K $125K
2022 $113K $182K $49K
2020 $49K $26K $23K

Between 2020 and 2025, reported annual revenue grew from $49K to $1.7M (+3404%), with total assets most recently reported at $2.0M.

Interactive year-over-year charts and full filing details available with membership.

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