Public Charity

DYRK1A SYNDROME US

DYRK1A SYNDROME US is a nonprofit organization categorized as Public Charity based in OTSEGO, MI. Its most recent IRS filing (2025) reports revenue of $47K, expenses of $173K, total assets of $423K. Imperigo tracks 10 reported grant relationships connected to this organization totaling approximately $85K.

EIN: 833342162 OTSEGO, MI Birth Defects & Genetic Diseases Research NTEE: H20 Latest filing: 2025
Total Revenue$47K
Total Expenses$173K
Total Assets$423K
Grant Records10
Funding Total$85K
Filing Years2021–2025

Mission

DYRK1A SYNDROME US IS A NON-PROFIT 501(C)3, TAX EXEMPT ORGANIZATION WITH A MAIN PURPOSE OF IMPROVING THE QUALITY OF LIFE FOR THOSE AFFECTED BY DYRK1A SYNDROME THROUGH SUPPORT, RDUCATION, RESEARCH AND COLLABORATION

Where $100 goes at Dyrk1a Syndrome US

How Dyrk1a Syndrome US divides every $100 it spends, from its own Form 990 filings, averaged across 5 years.

$79 Programs the work itself
$16 Management running the organization
$5 Fundraising raising the next dollar

Inside the $79 for programs

$50
Education and outreach to clinical and scientific communities about dyrk1a syndrome
64% of program spending
$29
Dykr1a syndrome family support & education
36% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

SECRETARY Adrianne Apodaca
PRESIDENT Amy J Clugston
DIRECTOR Ana Downey
DIRECTOR Carolle O'neil
DIRECTOR Katie Watson
TREASURER Priscilla Guzman

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$71,682 8 grants
Unspecified
$13,595 2 grants

Financial Trends

Year Revenue Expenses Assets
2025 $47K $173K $423K
2024 $46K $93K $505K
2023 $59K $84K $553K
2022 $188K $51K $578K
2021 $350K $11K $441K

Between 2021 and 2025, reported annual revenue declined from $350K to $47K (-87%), with total assets most recently reported at $423K.

Interactive year-over-year charts and full filing details available with membership.

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