Public Charity

I AM ALS

Based in WASHINGTON, DC, I AM ALS operates as a Public Charity. The organization reported $2.6M in revenue, $2.6M in expenses, $3.5M in total assets for fiscal year 2025. Imperigo tracks 69 reported grant relationships connected to this organization totaling approximately $6.3M.

EIN: 832016277 WASHINGTON, DC Patient & Family Support NTEE: E86 Latest filing: 2025
Total Revenue$2.6M
Total Expenses$2.6M
Total Assets$3.5M
Grant Records69
Funding Total$6.3M
Filing Years2021–2025

Mission

THE MISSION OF I AM ALS IS TO ACCELERATE A CURE FOR ALS BY MOBILIZING COLLECTIVE POWER TO DRIVE URGENT POLICY AND SYSTEMS CHANGE.

Where $100 goes at I AM Als

How I AM Als divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.

$75 Programs the work itself
$20 Management running the organization
$5 Fundraising raising the next dollar

Inside the $75 for programs

$35
Community organizing and communicationi am als builds and sustains a national movement by equipping community members those living with and impacted by als to take collective action
47% of program spending
$21
Government affairs, policy, and researchi am als leverages the expertise and lived experience of the als community to drive urgent federal policy and systems change
28% of program spending
$19
Community supporti am als offers a multi-pronged, person-centered support portfolio of programs for people living with als, caregivers, and loved ones as they navigate the emotional, practical, and…
25% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

VP OF COMMUNITY SUPPORT Aditi Narayan Minkoff
CEO Andrea Goodman
CO-FOUNDER Brian Wallach
BOARD MEMBER Chuck Smith
BOARD MEMBER Dan Tate
VP OF GOVERNMENT RELATIONS Dustin Watson

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$4,770,004 44 grants
Health & Medicine
$1,305,860 19 grants
Fundraising & Sponsorship
$104,460 1 grant
Education
$56,000 1 grant
Youth Development
$19,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $2.6M $2.6M $3.5M
2024 $4.1M $2.6M $3.4M
2023 $2.3M $2.2M $1.9M
2022 $1.6M $2.3M $1.7M
2021 $3.3M $2.4M $2.4M

Between 2021 and 2025, reported annual revenue declined from $3.3M to $2.6M (-23%), with total assets most recently reported at $3.5M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for I AM ALS

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