Mission
To improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC.
Public Charity
Progressive Familial Intrahepatic Cholestasis
Based in Stanton, KY, Progressive Familial Intrahepatic Cholestasis operates as a Public Charity. The organization reported $697K in revenue, $530K in expenses, $458K in total assets for fiscal year 2025. Imperigo tracks 14 reported grant relationships connected to this organization totaling approximately $403K.
EIN: 831084501
Stanton, KY
Alliances & Advocacy
NTEE: G01
Latest filing: 2025
Total Revenue$697K
Total Expenses$530K
Total Assets$458K
Grant Records14
Funding Total$403K
Filing Years2021–2025
Where $100 goes at Progressive Familial Intrahepatic Cholestasis
How Progressive Familial Intrahepatic Cholestasis divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$69
Programs
the work itself
$21
Management
running the organization
$10
Fundraising
raising the next dollar
Inside the $69 for programs
$69
In 2025 PFIC Network provided program services in the areas of peer support, education, outreach, advocacy and research to further our mission of improving the lives of patients…
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
For grant recipient's exempt purposes
$70,100
$22,600
For grant recipient's exempt purposes
$40,000
UNRESTRICTED
$5,639
For grant recipient's exempt purposes
$50,000
Showing up to 5 of 14 total records — full history available with membership.
Officers & Directors
Vice President
Charmaine Gravener
Co-Founder Executive Director
Emily Ventura
Director
Erik Lontok
Secretary
Erin Hovey
Treasurer
Hayley Ardila
Co-Founder
Tara Kearns
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $697K | $530K | $458K |
| 2024 | $352K | $502K | $213K |
| 2023 | $366K | $470K | $353K |
| 2022 | $271K | $527K | $487K |
| 2021 | $809K | $235K | $718K |
Between 2021 and 2025, reported annual revenue declined from $809K to $697K (-14%), with total assets most recently reported at $458K.
Interactive year-over-year charts and full filing details available with membership.