Public Charity

Progressive Familial Intrahepatic Cholestasis

Based in Stanton, KY, Progressive Familial Intrahepatic Cholestasis operates as a Public Charity. The organization reported $352K in revenue, $502K in expenses, $213K in total assets for fiscal year 2024. Imperigo tracks 14 reported grant relationships connected to this organization totaling approximately $403K.

EIN: 831084501 Stanton, KY Latest filing: 2024
Total Revenue$352K
Total Expenses$502K
Total Assets$213K
Grant Records14
Funding Total$403K
Filing Years2020–2024

Mission

To improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC.

Officers & Directors

Director Charmaine Gravener
Co-Founder Executive Director Emily Ventura
Director Erik Lontok
Secretary Erin Hovey
Treasurer Hayley Watts
Vice-President Co- Founder Tara Kearns

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$341,350 8 grants
HEALTH
$22,600 1 grant
HEALTH EQUITY GRANT
$15,000 1 grant
UNRESTRICTED
$11,694 2 grants
Rare Patient Impact Grant
$10,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $352K $502K $213K
2023 $366K $470K $353K
2022 $271K $527K $487K
2021 $809K $235K $718K
2020 $102K $77K $99K

Between 2020 and 2024, reported annual revenue grew from $102K to $352K (+247%), with total assets most recently reported at $213K.

Interactive year-over-year charts and full filing details available with membership.

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