Mission
With a single focus on funding research, the CMT Research Foundation exclusively funds research leading to the discovery, development, and clinical application of treatments and cures for Charcot-Marie-Tooth (CMT).
Public Charity
CMT Research Foundation Inc
Based in Atlanta, GA, CMT Research Foundation Inc operates as a Public Charity. The organization reported $8.7M in revenue, $4.6M in expenses, $8.7M in total assets for fiscal year 2025. Imperigo tracks 47 reported grant relationships connected to this organization totaling approximately $3.8M.
EIN: 825476655
Atlanta, GA
Nerve, Muscle & Bone Diseases Research
NTEE: H50
Latest filing: 2025
Total Revenue$8.7M
Total Expenses$4.6M
Total Assets$8.7M
Grant Records47
Funding Total$3.8M
Filing Years2021–2025
Where $100 goes at CMT Research Foundation Inc
How CMT Research Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 5 years.
$70
Programs
the work itself
$9
Management
running the organization
$21
Fundraising
raising the next dollar
Inside the $70 for programs
$70
Support the most promising and efficient Charcot-Marie-Tooth research aimed only toward drug delivery by developing strategic alliances with academic and industry stakeholders
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
MEDICAL RESEARCH
$500,000
FOR RECIPIENT'S EXEMPT PURPOSE
$218,500
$196,875
FOR ENDGAME CAMPAIGN IN HONOR OF PETER DESILVA
$50,000
GENERAL SUPPORT
$43,205
Showing up to 5 of 47 total records — full history available with membership.
Officers & Directors
Treasurer
Adam Kauffman
VP of Philanthropy
Anna Price
Member
Ann Fairchild
Member
Arthur Suckow
Vice-Chair / CEO thru 10/16/24
Cleary Simpson
Chief Operations Officer
Erich Fasnacht
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $8.7M | $4.6M | $8.7M |
| 2024 | $4.6M | $4.1M | $4.7M |
| 2023 | $3.5M | $3.6M | $4.0M |
| 2022 | $4.4M | $2.6M | $3.9M |
| 2021 | $467K | $855K | $2.4M |
Between 2021 and 2025, reported annual revenue grew from $467K to $8.7M (+1755%), with total assets most recently reported at $8.7M.
Interactive year-over-year charts and full filing details available with membership.