Mission
TO DRIVE RESEARCH EFFORTS THAT SHOW PROMISE TO TREAT OR CURE KABUKI SYNDROME THROUGH FUNDRAISING, KNOWLEDGE-SHARING, AND COLLABORATING WITH RESEARCHERS AROUND THE WORLD.
Public Charity
KABUKI SYNDROME FOUNDATION
KABUKI SYNDROME FOUNDATION, of NORTHBROOK, IL, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $1.2M in revenue, $929K in expenses, $2.3M in total assets. 18 publicly reported grants to this organization, totaling roughly $1.0M, appear in IRS filings.
EIN: 825401904
NORTHBROOK, IL
Specifically Named Diseases
NTEE: G80
Latest filing: 2024
Total Revenue$1.2M
Total Expenses$929K
Total Assets$2.3M
Grant Records18
Funding Total$1.0M
Filing Years2019–2024
Where $100 goes at Kabuki Syndrome Foundation
How Kabuki Syndrome Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 6 years.
$85
Programs
the work itself
$9
Management
running the organization
$6
Fundraising
raising the next dollar
Inside the $85 for programs
$84
The foundation funds various research projects that follow the "leap" strategy: learn, enable, accelerate, and prepare
$1
The foundation hosts a medical conference that brings together several of the leading kabuki syndrome researchers in the world, as well as many individuals with kabuki syndrome and…
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL
$100,000
$261,000
GENERAL
$100,000
MEDICAL / PUBLIC SERVICES
$10,000
FOR RECIPIENT'S EXEMPT PURPOSE
$8,100
Showing up to 5 of 18 total records — full history available with membership.
Officers & Directors
CO-PRESIDENT
Annie Dean
VICE PRESIDENT
Edoardo Zegna Di Monte Rubello
DIRECTOR
Jessica Mcandrew
CO-PRESIDENT
Jill Orum Dunbar
VICE PRESIDENT
Leila Zegna Di Monte Rubello
TREASURER
Patrick Dunbar
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $1.2M | $929K | $2.3M |
| 2023 | $2.1M | $600K | $2.1M |
| 2022 | $363K | $237K | $482K |
| 2020 | $9K | $1K | $12K |
| 2019 | $4K | $5K | $5K |
Between 2019 and 2024, reported annual revenue grew from $4K to $1.2M (+28397%), with total assets most recently reported at $2.3M.
Interactive year-over-year charts and full filing details available with membership.