Public Charity

Cure VCP Disease Inc

Cure VCP Disease Inc is a nonprofit organization categorized as Public Charity based in Warner Robins, GA. Its most recent IRS filing (2025) reports revenue of $424K, expenses of $378K, total assets of $485K. Imperigo tracks 16 reported grant relationships connected to this organization totaling approximately $360K.

EIN: 824368871 Warner Robins, GA Nerve, Muscle & Bone Diseases NTEE: G50 Latest filing: 2025
Total Revenue$424K
Total Expenses$378K
Total Assets$485K
Grant Records16
Funding Total$360K
Filing Years2021–2025

Mission

Research (Tools, Collaborations, Models and Convenings)

Where $100 goes at Cure VCP Disease Inc

How Cure VCP Disease Inc divides every $100 it spends, from its own Form 990 filings, averaged across 6 years.

$80 Programs the work itself
$9 Management running the organization
$11 Fundraising raising the next dollar

Inside the $80 for programs

$53
Coordinating the VCP Research Network, hostinga patient registry, creating scientific models to share with scientists, and hosting the scientific focus group
66% of program spending
$15
We awarded two research grants 1.) to Genethon to investigate gene editing approaches in VCP iPSCs and 2.) through Uplifting Athletes for a young investigator
19% of program spending
$12
Supporting patients through genetic testing stipends, hosting support groups and educational webinars
15% of program spending

Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.

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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

CFO Allison Peck
SECRETARY Amy Casey
BOARD MEMBER Han Phan
BOARD MEMBER Jesse Vargas
BOARD MEMBER Kelly Gold
BOARD MEMBER Maureen Mcarthur Hart

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$300,631 13 grants
Civil Rights & Social Justice
$35,000 1 grant
Health & Medicine
$24,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $424K $378K $485K
2024 $319K $370K $432K
2023 $421K $350K $489K
2022 $326K $261K $407K
2021 $309K $142K $341K

Between 2021 and 2025, reported annual revenue grew from $309K to $424K (+37%), with total assets most recently reported at $485K.

Interactive year-over-year charts and full filing details available with membership.

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