Mission
Support research and education that lead to improved quality of life for individuals with ASXL syndromes.
Public Charity
ASXL RARE RESEARCH ENDOWMENT FOUNDATION
ASXL RARE RESEARCH ENDOWMENT FOUNDATION, of Gorham, ME, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $888K in revenue, $475K in expenses, $1.1M in total assets. 13 publicly reported grants to this organization, totaling roughly $182K, appear in IRS filings.
EIN: 823890665
Gorham, ME
Fund Raising & Fund Distribution
NTEE: H12
Latest filing: 2024
Total Revenue$888K
Total Expenses$475K
Total Assets$1.1M
Grant Records13
Funding Total$182K
Filing Years2019–2024
Where $100 goes at Asxl Rare Research Endowment Foundation
How Asxl Rare Research Endowment Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 5 years.
$82
Programs
the work itself
$12
Management
running the organization
$6
Fundraising
raising the next dollar
Inside the $82 for programs
$37
Research grants
$28
Conferences
$12
ASXL Registry and Biobank
Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL SUPPORT
$26,293
$20,757
GENERAL SUPPORT
$9,856
GENERAL SUPPORT
$9,856
Develop family-friendly materials about ASXL-related disorders that newly diagnosed families can understand from published research.
$9,050
Showing up to 5 of 13 total records — full history available with membership.
Officers & Directors
Executive Director
Amanda Johnson
Director
Amanda Scheirer
Treasurer
Daniel Ordower
Director
Julie Lopez
President
Laura Badmaev
Director
Lauren Adams
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $888K | $475K | $1.1M |
| 2023 | $284K | $229K | $669K |
| 2022 | $229K | $225K | $614K |
| 2020 | $97K | $278K | $607K |
| 2019 | $897K | $122K | $788K |
Between 2019 and 2024, reported annual revenue held roughly steady at around $888K, with total assets most recently reported at $1.1M.
Interactive year-over-year charts and full filing details available with membership.