Mission
Support research and education that lead to improved quality of life for individuals with ASXL syndromes.
Public Charity
ASXL RARE RESEARCH ENDOWMENT FOUNDATION
ASXL RARE RESEARCH ENDOWMENT FOUNDATION, of Gorham, ME, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $888K in revenue, $475K in expenses, $1.1M in total assets. 11 publicly reported grants to this organization, totaling roughly $173K, appear in IRS filings.
EIN: 823890665
Gorham, ME
Latest filing: 2024
Total Revenue$888K
Total Expenses$475K
Total Assets$1.1M
Grant Records11
Funding Total$173K
Filing Years2019–2024
Sample Grants Received
GENERAL SUPPORT
$26,293
$20,757
GENERAL SUPPORT
$9,856
Develop family-friendly materials about ASXL-related disorders that newly diagnosed families can understand from published research.
$9,050
$14,924
Showing up to 5 of 11 total records — full history available with membership.
Officers & Directors
Executive Director
Amanda Johnson
Director
Amanda Scheirer
Treasurer
Daniel Ordower
Director
Julie Lopez
President
Laura Badmaev
Director
Lauren Adams
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $888K | $475K | $1.1M |
| 2023 | $284K | $229K | $669K |
| 2022 | $229K | $225K | $614K |
| 2020 | $97K | $278K | $607K |
| 2019 | $897K | $122K | $788K |
Between 2019 and 2024, reported annual revenue held roughly steady at around $888K, with total assets most recently reported at $1.1M.
Interactive year-over-year charts and full filing details available with membership.