Public Charity

THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY

THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY is a nonprofit organization categorized as Public Charity based in MINNEAPOLIS, MN. Its most recent IRS filing (2024) reports revenue of $284K, expenses of $411K, total assets of $323K. Imperigo tracks 19 reported grant relationships connected to this organization totaling approximately $1.1M.

EIN: 823888108 MINNEAPOLIS, MN Latest filing: 2024
Total Revenue$284K
Total Expenses$411K
Total Assets$323K
Grant Records19
Funding Total$1.1M
Filing Years2020–2024

Mission

Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.

Officers & Directors

Executive Director Benjamin Smith
Director Chris Cleary
Director Debbie Triptow
Chairman Dr Daniel Grossman
Director Dr Margo Hutchinson
Director Gabriel Bassin

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health
$615,000 2 grants
HEALTH
$232,150 3 grants
GENERAL OPERATING SUPPORT
$100,733 1 grant
For grant recipient's exempt purposes
$63,780 5 grants
GENERAL SUPPORT
$38,975 3 grants

Financial Trends

Year Revenue Expenses Assets
2024 $284K $411K $323K
2023 $210K $525K $441K
2022 $543K $506K $743K
2021 $403K $402K $708K
2020 $613K $133K $715K

Between 2020 and 2024, reported annual revenue declined from $613K to $284K (-54%), with total assets most recently reported at $323K.

Interactive year-over-year charts and full filing details available with membership.

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