Public Charity

CURE RARE DISEASE INC

Based in WOODBRIDGE, CT, CURE RARE DISEASE INC operates as a Public Charity. The organization reported $5.3M in revenue, $2.3M in expenses, $9.2M in total assets for fiscal year 2025. Imperigo tracks 46 reported grant relationships connected to this organization totaling approximately $2.0M.

EIN: 822473513 WOODBRIDGE, CT Fund Raising & Fund Distribution NTEE: G12 Latest filing: 2025
Total Revenue$5.3M
Total Expenses$2.3M
Total Assets$9.2M
Grant Records46
Funding Total$2.0M
Filing Years2021–2025

Mission

OUR MISSION IS TO ENABLE AND FINANCE THE DEVELOPMENT OF LIFE-SAVING GENETIC MEDICINES FOR ULTRA-RARE PATIENT POPULATIONS PREVIOUSLY DEEMED TOO RARE TO TREAT. TO REALIZE THIS, OUR UNIQUE ECOSYSTEMS FACILITATES COLLABORATION BETWEEN WORLD-RENOWNED RESEARCHERS AND CLINICIANS, POLICY EXPERTS AND OUR GENEROUS DONORS. TOGETHER, WE ARE FUNDAMENTALLY CHANGING THE ULTRA-RARE DISEASE EXPERIENCE AND BURDEN FOR MILLIONS OFPEOPLE AROUND THE WORLD WITH OUR DISCOVERIES AND METHODS - WHILE BRINGING HOPE TO PATIENTS WAITING FOR A CURE.

Where $100 goes at Cure Rare Disease Inc

How Cure Rare Disease Inc divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.

$88 Programs the work itself
$6 Management running the organization
$6 Fundraising raising the next dollar

Inside the $88 for programs

$88
To advance the development of ultra-rare disease therapeutics
All program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

MEMBER Brent Warner
MEMBER Cody Tranbarger
MEMBER Greg Klassen
MEMBER Jeremy Sternberg
MEMBER Jessica Curran
MEMBER Klaus Veitinger

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$1,697,858 32 grants
Health & Medicine
$150,350 5 grants
Research & Policy
$112,500 5 grants
Civil Rights & Social Justice
$80,000 2 grants
Unspecified
$7,141 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $5.3M $2.3M $9.2M
2024 $4.4M $2.0M $6.0M
2023 $2.3M $2.0M $3.3M
2022 $2.8M $3.2M $840K
2021 $2.5M $2.3M $1.5M

Between 2021 and 2025, reported annual revenue grew from $2.5M to $5.3M (+115%), with total assets most recently reported at $9.2M.

Interactive year-over-year charts and full filing details available with membership.

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