Public Charity

THE MED13L FOUNDATION INC

THE MED13L FOUNDATION INC is a nonprofit organization categorized as Public Charity based in BARRINGTON, NJ. Its most recent IRS filing (2024) reports revenue of $188K, expenses of $348K, total assets of $580K. Imperigo tracks 8 reported grant relationships connected to this organization totaling approximately $140K.

EIN: 822469441 BARRINGTON, NJ Single Organization Support NTEE: H11 Latest filing: 2024
Total Revenue$188K
Total Expenses$348K
Total Assets$580K
Grant Records8
Funding Total$140K
Filing Years2021–2024

Mission

MED13L PROVIDES SUPPORT FOR RESEARCH, ADVANCEMENT AND RAISING AWARENESS OF THE RARE GENETIC DISEASE, MED13L. THE OBJECTIVES OF MED13L IS TO RAISE AWARENESS IN THE LOCAL, NATIONAL AND INTERNATIONAL COMMUNITY ABOUT THE RARE GENETIC DISEASE, MED13L AND TO PROVIDE FUNDING FOR RESEARCH, DEVELOPMENT AND ADVANCEMENT INTO FIGHTING THIS DISEASE. THE ULTIMATE GOAL IS TO FIND OUT MORE ABOUT WHAT CAUSES MED13L AND FIND A CURE. IN OUR ENDEAVOR TO REACH THAT GOAL, MED13L STRIVES TO CREATE A SUPPORT SYSTEM FOR FAMILIES IMPACTED BY MED13L ALL THE WHILE PROVIDING FUNDING OPPORTUNITIES TO HEALTHCARE PROFESSIONALS AND RESEARCHERS WHO ARE HELPING TO FIND A CURE TO THIS RARE GENETIC DISEASE.

Where $100 goes at The Med13l Foundation Inc

How The Med13l Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 4 years.

$83 Programs the work itself
$8 Management running the organization
$9 Fundraising raising the next dollar

Inside the $83 for programs

$83
Coordinate and collaborate with the global scientific community to understand the function of the med13l gene in order to develop effective treatments and a cure for med13l syndrome
All program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

TRUSTEE AS OF SEPT 2024 Inon Shampanier
SECRETARY Jennifer Robertson
CHAIR Kathleen Barry Boychuck
TRUSTEE UNTIL SEPT 2024 Kelly Sexton
TRUSTEE UNTIL SEPT 2024 Kim Sokorai
TREASURER Nick Seaver

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$133,070 6 grants
Unspecified
$6,642 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $188K $348K $580K
2023 $609K $201K $740K
2022 $324K $42K $332K
2021 $99K $53K $50K

Between 2021 and 2024, reported annual revenue grew from $99K to $188K (+90%), with total assets most recently reported at $580K.

Interactive year-over-year charts and full filing details available with membership.

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