Public Charity

STXBP1 FOUNDATION

Based in HOLLY SPRINGS, NC, STXBP1 FOUNDATION operates as a Public Charity. The organization reported $1.4M in revenue, $1.3M in expenses, $1.5M in total assets for fiscal year 2024. Imperigo tracks 25 reported grant relationships connected to this organization totaling approximately $707K.

EIN: 821439459 HOLLY SPRINGS, NC Latest filing: 2024
Total Revenue$1.4M
Total Expenses$1.3M
Total Assets$1.5M
Grant Records25
Funding Total$707K
Filing Years2019–2024

Mission

TO CREATE AWARENESS IN THE DISORDERS ASSOCIATED WITH STXBP1 MUTATIONS. FUND AND DRIVE RESEARCH DISCOVERY OF A CURE. PROVIDE FAMILIES WITH TOOLS TO HELP THEM UNDERSTAND THE DISEASE & HOW TO GET INVOLVED. ADVOCATE TO IMPROVE EARLY DETECTION. FOSTER ACTIVISM TO HELP CHANGE POLICIES IN FAVOR OF ORPHANED DISEASES. IMPROVE THE LIVES OF OUR STXBP1 FAMILIES.

Officers & Directors

PRESIDENT Charlene Son Rigby
SECRETARY Cristina Brennan
DIRECTOR, DEVELOPMENT Daniele Greiner
TREASURER Heather Jones
VICE PRESIDENT & SCIENTIFI Jacqueline Steinberg
DIRECTOR, TECHNOLOGY Jared Barnum

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$266,570 3 grants
GENERAL SUPPORT
$191,165 7 grants
General Support
$106,467 1 grant
HEALTH
$33,350 2 grants
Unrestricted
$25,222 3 grants

Financial Trends

Year Revenue Expenses Assets
2024 $1.4M $1.3M $1.5M
2023 $736K $1.3M $1.4M
2022 $1.8M $509K $1.7M
2020 $297K $12K $318K
2019 $106K $131K $34K

Between 2019 and 2024, reported annual revenue grew from $106K to $1.4M (+1240%), with total assets most recently reported at $1.5M.

Interactive year-over-year charts and full filing details available with membership.

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