Mission
The Rare Disease Policy & Advocacy (RDPA) Program is a program initiative designed to strengthen and support rare disease advocacy in Maryland. RDPA empowers patients, caregivers and healthcare professional to become effective advocates by providing educational meetings, legislative resources, advocacy tools, and special events that engage patients, caregivers, and supporters. The program's goal is to unite the rare disease community of Maryland, expand patient advocacy participation, and work collectively to ensure that the voices of individuals affected by rare diseases are heard within state governments and on Capitol Hill.