Mission
To serve, educate, and fund research for families coping with the effects of PURA Syndrome.
Public Charity
PURA Syndrome Foundation
PURA Syndrome Foundation is a Public Charity headquartered in Berwick, ME. Financial data from the 2025 filing: $256K revenue, $108K expenses, $556K total assets. 21 publicly reported grants to this organization, totaling roughly $373K, appear in IRS filings.
EIN: 812235818
Berwick, ME
Latest filing: 2025
Total Revenue$256K
Total Expenses$108K
Total Assets$556K
Grant Records21
Funding Total$373K
Filing Years2021–2025
Sample Grants Received
UNRESTRICTED
$13,257
GENERAL SUPPORT
$5,683
GENERAL SUPPORT
$5,679
UNRESTRICTED GENERAL SUPPORT
$5,000
UNRESTRICTED
$26,760
Showing up to 5 of 21 total records — full history available with membership.
Officers & Directors
At Large
Celena Lozano
Treasurer
Damon Fisher
Co President
Elizabeth Astridge
At Large
Eva Kittay
Co President
Eva Tucker
Ex-Officio
Kevin Roche
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $256K | $108K | $556K |
| 2024 | $94K | $69K | $390K |
| 2023 | $46K | $72K | $365K |
| 2022 | $70K | $14K | $390K |
| 2021 | $54K | $47K | $334K |
Between 2021 and 2025, reported annual revenue grew from $54K to $256K (+374%), with total assets most recently reported at $556K.
Interactive year-over-year charts and full filing details available with membership.