Small Public Charity

VWM FAMILIES FOUNDATION INC

VWM FAMILIES FOUNDATION INC is a nonprofit organization categorized as Small Public Charity based in Greenwich, CT. Its most recent IRS filing (2025) reports revenue of $89K, expenses of $65K, total assets of $68K. Imperigo tracks 6 reported grant relationships connected to this organization totaling approximately $71K.

EIN: 812058803 Greenwich, CT Latest filing: 2025
Total Revenue$89K
Total Expenses$65K
Total Assets$68K
Grant Records6
Funding Total$71K
Filing Years2019–2025

Mission

Vanishing White Matter disease VWM is a very rare neurological condition that destroys myelin the brains white matter In doing so it permanently affects transmission of brain signals to the rest of the body VWM primarily affects children and is untreatable incurable and terminal In 2016 the VWM Families Foundation was formed to raise awareness of VWM to raise money for research and to support families living with VWM within the United States and worldwide

Officers & Directors

Co-founder and President Allyson Buck
Board Member Patient Advocacy Brett Hollberg
Board Member Alliance Relations Donna Skwirut
Co-founder and Operations Nicholas Buck
Board Member Stefanie Rohring

Officer compensation and complete director data available with membership.

Top Grant Purposes

Unrestricted
$23,252 2 grants
For grant recipient's exempt purposes
$22,000 2 grants
GENERAL SUPPORT
$14,467 1 grant
General Support
$10,800 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $89K $65K $68K
2024 $55K $186K $43K
2023 $67K $6K $174K
2020 $74K $94K $88K
2019 $59K $11K $157K

Between 2019 and 2025, reported annual revenue grew from $59K to $89K (+51%), with total assets most recently reported at $68K.

Interactive year-over-year charts and full filing details available with membership.

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