Mission
THE WIEDEMANN-STEINER SYNDROME FOUNDATION PROVIDES EDUCATION, FOSTERS COMMUNITY, AND STIMULATES RESEARCH TO IMPROVE THE LIVES OF EVERYONE IMPACTED BY WSS.
Public Charity
THE WIEDEMANN-STEINER SYNDROME FOUNDATION
Based in SACRAMENTO, CA, THE WIEDEMANN-STEINER SYNDROME FOUNDATION operates as a Public Charity. The organization reported $280K in revenue, $103K in expenses, $1.2M in total assets for fiscal year 2025. Imperigo tracks 8 reported grant relationships connected to this organization totaling approximately $73K.
EIN: 811260031
SACRAMENTO, CA
Single Organization Support
NTEE: G11
Latest filing: 2025
Total Revenue$280K
Total Expenses$103K
Total Assets$1.2M
Grant Records8
Funding Total$73K
Filing Years2021–2025
Where $100 goes at The Wiedemann-Steiner Syndrome Foundation
How The Wiedemann-Steiner Syndrome Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.
$72
Programs
the work itself
$25
Management
running the organization
$3
Fundraising
raising the next dollar
Inside the $72 for programs
$18
Expanded outreach through its family volunteers to serve as regional ambassadors and hosted several in-person and virtual activities to raise awareness of wss including the monthly expert virtual…
$18
Raised awareness and support to initiate medical research on the wss gene by approving funding for a new natural history study to build on the work done through…
$18
Leveraged the scientific advisory board in running a process to solicit cell line study proposal,s and after evaluating, ultimately approving funding for three proposals to proceed in 2026
Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL SUPPORT
$9,472
GENERAL SUPPORT
$8,808
GENERAL SUPPORT
$8,808
GENERAL SUPPORT
$9,008
GENERAL SUPPORT
$11,147
Showing up to 5 of 8 total records — full history available with membership.
Officers & Directors
BOARD MEMBER
Alexandra Gillett
BOARD MEMBER
Annabel Corbett
TREASURER
Drew Schaefer
SECRETARY
Kim Lagravinese
PRESIDENT
Libby Woolford
BOARD MEMBER
Sarah Spear
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $280K | $103K | $1.2M |
| 2024 | $274K | $113K | $1.0M |
| 2023 | $236K | $22K | $860K |
| 2022 | $228K | $125K | $647K |
| 2021 | $188K | $72K | $545K |
Between 2021 and 2025, reported annual revenue grew from $188K to $280K (+49%), with total assets most recently reported at $1.2M.
Interactive year-over-year charts and full filing details available with membership.