Mission
To fund neurofibromatosis research and education and to provide for support groups for those facing the illness.
Public Charity
Texas Neurofibromatosis Foundation
Texas Neurofibromatosis Foundation is a nonprofit organization categorized as Public Charity based in Flower Mound, TX. Its most recent IRS filing (2025) reports revenue of $803K, expenses of $676K, total assets of $626K. Imperigo tracks 36 reported grant relationships connected to this organization totaling approximately $634K.
EIN: 742138345
Flower Mound, TX
Nerve, Muscle & Bone Diseases
NTEE: G50
Latest filing: 2025
Total Revenue$803K
Total Expenses$676K
Total Assets$626K
Grant Records36
Funding Total$634K
Filing Years2020–2025
Where $100 goes at Texas Neurofibromatosis Foundation
How Texas Neurofibromatosis Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 5 years.
$34
Programs
the work itself
$16
Management
running the organization
$50
Fundraising
raising the next dollar
Inside the $34 for programs
$25
The organization provides neurofibromatosis educational materials/information to patients, physicians, teachers and counselors; physician and clinical referrals; and statewide neurofibromatosis clinics
$7
The organization funds and supports neurofibromatosis research projects and participates in a Neurofibromatosis National Affairs Coalition to increase public awareness and insure and increase funding allocated from federally…
$2
The organization increases neurofibromatosis public awareness by publishing newsletters, public speaking engagements, exhibiting at state educational and medical meetings, and using billboards
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
TO PROVIDE SUPPORT FOR OPERATIONS
$80,000
GENERAL SUPPORT
$30,000
THIS GRANT IS DESIGNATED FOR GENERAL SUPPORT.
$14,800
GENERAL SUPPORT
$11,610
GENERAL SUPPORT
$11,610
Showing up to 5 of 36 total records — full history available with membership.
Officers & Directors
Director
Carran Cullinan
Executive Director
Cindy Hahn
Director
Edel Cuadra
Director
Jane Hoskins
Director
Janie Perelman
Director
Jeff Davison
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $803K | $676K | $626K |
| 2024 | $616K | $624K | $506K |
| 2023 | $647K | $693K | $533K |
| 2022 | $564K | $577K | $591K |
| 2020 | $263K | $351K | $618K |
Between 2020 and 2025, reported annual revenue grew from $263K to $803K (+205%), with total assets most recently reported at $626K.
Interactive year-over-year charts and full filing details available with membership.