Small Public Charity

INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME-ME

INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME-ME is a nonprofit organization categorized as Small Public Charity based in STONY BROOK, NY. Its most recent IRS filing (2025) reports revenue of $133K, expenses of $34K, total assets of $456K. Imperigo tracks 1 reported grant relationships connected to this organization totaling approximately $5K.

EIN: 731416680 STONY BROOK, NY Birth Defects & Genetic Diseases Research NTEE: H20 Latest filing: 2025
Total Revenue$133K
Total Expenses$34K
Total Assets$456K
Grant Records1
Funding Total$5K
Filing Years2020–2025

Mission

THE MISSION OF IACFS/ME IS TO PROMOTE, STIMULATE AND COORDINATE THE EXCHANGE OF IDEAS RELATED TO CHRONIC FATIGUE SYNDRONE(CFS) AND FIBROMYALGIA(FM) RESEARCH, PATIENT CARE AND TREATMENT IN ADDITION, THE IACFS/ME PERIODICALLY REVIEWS THE CURRENT RESEARCH AND TREATMENT LITERATURE AND MEDIA REPORTS FOR THE BENEFIT OF SCIENTISTS, CLINICIANS AND PATIENTS.

Where $100 goes at International Association for Chronic Fatigue Syndrome-Me

How International Association for Chronic Fatigue Syndrome-Me divides every $100 it spends, from its own Form 990-EZ filings, averaged across 7 years.

$55 Programs the work itself
$45 Everything else operations and overhead

Form 990-EZ reports program spending but doesn't separate management from fundraising, so those are shown together.

Inside the $55 for programs

$43
Annual conference
79% of program spending
$12
Website/membership program
21% of program spending · Reported in the filing: 149 members
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Source: Form 990-EZ filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

TREASURER Charles Lapp
PRESIDENT Fred Friedberg
BOARD MEMBER Fridbjorn Sigurdsson
BOARD MEMBER Irina Rozenfeld
VICE PRESIDENT Lily Chu
BOARD MEMBER Luis Nacul

Officer compensation and complete director data available with membership.

Top Grant Purposes

Unspecified
$5,498 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $133K $34K $456K
2024 $166K $17K $357K
2023 $101K $83K $208K
2022 $104K $57K $190K
2020 $69K $46K $71K

Between 2020 and 2025, reported annual revenue grew from $69K to $133K (+92%), with total assets most recently reported at $456K.

Interactive year-over-year charts and full filing details available with membership.

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