Public Charity

ALS Northwest

ALS Northwest, of Portland, OR, is a Public Charity tracked in Imperigo's IRS 990 database. The 2026 filing shows $2.8M in revenue, $3.0M in expenses, $4.4M in total assets. 69 publicly reported grants to this organization, totaling roughly $2.7M, appear in IRS filings.

EIN: 680516066 Portland, OR Patient & Family Support NTEE: E86 Latest filing: 2026
Total Revenue$2.8M
Total Expenses$3.0M
Total Assets$4.4M
Grant Records69
Funding Total$2.7M
Filing Years2022–2026

Mission

LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH ALS (LOU GEHRIGS DISEASE) AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.

Where $100 goes at ALS Northwest

How ALS Northwest divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.

$79 Programs the work itself
$11 Management running the organization
$10 Fundraising raising the next dollar

Inside the $79 for programs

$28
Outreach and advocacyals northwest provides ongoing financial support to support federal and state public policy initiatives to improve the lives of families living with als, outreach efforts to…
36% of program spending
$19
Independence programsto support and empower people living with als to live independently and as fully as possible, the organization provides services that help people with equipment and tools…
24% of program spending · Reported in the filing: 75 families; 190 families
$12
Education and support programsstrategically based in and near patients home communities, care services coordinators work directly with people with als and their families to help them navigate management…
15% of program spending · Reported in the filing: 300 visits

Plus 2 more programs. Cost per person served and the full program breakdown are on the full profile.

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Source: Form 990 filings with the IRS, latest fiscal year 2026. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

DEVELOPMENT DIR. Amy Easton
Past President Amy Frazey
Past Vice Pres. Arturo Gonzalez
Executive Dir. Cassy Adams
Secretary Doug Mcclure
Director Elizabeth Garvin

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$2,058,390 39 grants
Health & Medicine
$623,968 26 grants
Education
$7,000 1 grant
Unspecified
$25,300 2 grants

Financial Trends

Year Revenue Expenses Assets
2026 $2.8M $3.0M $4.4M
2025 $2.7M $3.1M $4.3M
2024 $2.4M $2.9M $4.5M
2023 $3.7M $3.1M $5.0M
2022 $4.4M $3.0M $3.9M

Between 2022 and 2026, reported annual revenue declined from $4.4M to $2.8M (-36%), with total assets most recently reported at $4.4M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for ALS Northwest

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