Public Charity

LYMEDISEASEORG

LYMEDISEASEORG is a nonprofit organization categorized as Public Charity based in SAN DIEGO, CA. Its most recent IRS filing (2024) reports revenue of $569K, expenses of $682K, total assets of $1.6M. Imperigo tracks 38 reported grant relationships connected to this organization totaling approximately $627K.

EIN: 680214101 SAN DIEGO, CA Latest filing: 2024
Total Revenue$569K
Total Expenses$682K
Total Assets$1.6M
Grant Records38
Funding Total$627K
Filing Years2019–2024

Mission

LYMEDISEASE.ORG (FORMERLY CALDA) ADVOCATES NATIONWIDE TO MAKE THE PATIENT VOICE STRONER, TO SUPPORT PATIENT-CENTERED RESEARCH, TO CREATE LEGISLATIVE CHANGE, AND TO CREATE A FUTURE WHERE LYME PATIENTS CAN RECEIVE THE TREATMENTS THEY NEED TO GET WELL.

Officers & Directors

BOARD MEMBER Barbara Barsocchini
CTO Caleb Manscill
SECRETARY, C Carolyn Degnan
DIRECTOR Christine Green
PRESIDENT Dorothy Kupcha Leland
DIRECTOR Erica Lehman

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$113,400 8 grants
MYLYMEDATA PROJECT
$100,000 1 grant
GENERAL OPERATING SUPPORT
$100,000 1 grant
HEALTH
$51,628 7 grants
OPERATIONS
$50,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $569K $682K $1.6M
2023 $502K $654K $1.6M
2022 $697K $619K $1.7M
2020 $1.2M $559K $1.7M
2019 $624K $621K $928K

Between 2019 and 2024, reported annual revenue declined from $624K to $569K (-9%), with total assets most recently reported at $1.6M.

Interactive year-over-year charts and full filing details available with membership.

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