Public Charity

CREUTZFELDT-JAKOB DISEASE FOUNDATION INC

CREUTZFELDT-JAKOB DISEASE FOUNDATION INC is a Public Charity headquartered in AKRON, OH. Financial data from the 2024 filing: $2.9M revenue, $1.9M expenses, $9.2M total assets. 69 publicly reported grants to this organization, totaling roughly $1.6M, appear in IRS filings.

EIN: 650404623 AKRON, OH Latest filing: 2024
Total Revenue$2.9M
Total Expenses$1.9M
Total Assets$9.2M
Grant Records69
Funding Total$1.6M
Filing Years2019–2024

Mission

CREUTZFELDT-JAKOB DISEASE (CJD) IS A RARE, RAPIDLY PROGRESSIVE NEURODEGENERATIVE DISEASE, ONE OF SEVERAL PRION DISEASES CAUSED BY PRION PROTEINS THAT MISFOLD IN THE BRAIN. THERE IS NO TREATMENT OR CURE AND THE DISEASE IS INVARIABLY FATAL. (CONTINUED ON SCHEDULE O)

Officers & Directors

BOARD MEMBER Amanda Baxley Kalinsky
BOARD MEMBER Brenda Meaney
BOARD MEMBER Brian Appleby
BOARD MEMBER Clarence Hunter
BOARD MEMBER Dave Morris
PRESIDENT/EXECUTIVE DIRECTOR Deborah Yobs

Officer compensation and complete director data available with membership.

Top Grant Purposes

GENERAL SUPPORT
$664,573 13 grants
For grant recipient's exempt purposes
$172,258 8 grants
Unrestricted
$122,581 3 grants
PUBLIC, SOCIETAL BENEFIT
$115,715 8 grants
general support
$112,163 2 grants

Financial Trends

Year Revenue Expenses Assets
2024 $2.9M $1.9M $9.2M
2023 $2.9M $1.5M $8.1M
2022 $2.9M $1.3M $6.4M
2020 $1.8M $1.0M $3.6M
2019 $1.7M $963K $2.7M

Between 2019 and 2024, reported annual revenue grew from $1.7M to $2.9M (+72%), with total assets most recently reported at $9.2M.

Interactive year-over-year charts and full filing details available with membership.

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