Mission
To lead global efforts in understanding and treating frontotemporal dementias by advancing breakthrough research, fostering interdisciplinary collaboration, supporting emerging scientists, and promoting excellence in educational initiatives.
Public Charity
International Society for Frontotemporal Dementias Inc
International Society for Frontotemporal Dementias Inc is a Public Charity headquartered in Burnsville, MN. Financial data from the 2025 filing: $504K revenue, $161K expenses, $483K total assets. 4 publicly reported grants to this organization, totaling roughly $473K, appear in IRS filings.
EIN: 611581848
Burnsville, MN
Neurology & Neuroscience
NTEE: G96
Latest filing: 2025
Total Revenue$504K
Total Expenses$161K
Total Assets$483K
Grant Records4
Funding Total$473K
Filing Years2020–2025
Where $100 goes at International Society for Frontotemporal Dementias Inc
How International Society for Frontotemporal Dementias Inc divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$83
Programs
the work itself
$17
Management
running the organization
$0
Fundraising
none reported
No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.
Inside the $83 for programs
$83
ISFTD organized and hosted the 2024 International ALS-FTD Workshop in Amsterdam, convening 150 FTD professionals to advance understanding and collaboration in the FTD and ALS fields
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
MEDICAL / PUBLIC SERVICES
$150,000
General support for programs, operations and other charitable purposes
$50,000
For grant recipient's exempt purposes
$23,000
INTERNATIONAL CONFERENCE SPONSORSHIP AND STRATEGIC PLANNING
$250,000
Showing up to 5 of 4 total records — full history available with membership.
Officers & Directors
Chair-Elect Publications
Brigid Ryan
Executive Director
David Casalod
Chair-Elect Program & Site
David Irwin
Chair Finance
Howie Rosen
President-Elect
Jonathan Rohrer
Chair Publications
Kyrana Tsapkini
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $504K | $161K | $483K |
| 2024 | $134K | $26K | $174K |
| 2023 | $29K | $39K | $65K |
| 2021 | $48K | $22K | $58K |
| 2020 | $15K | $14K | $32K |
Between 2020 and 2025, reported annual revenue grew from $15K to $504K (+3163%), with total assets most recently reported at $483K.
Interactive year-over-year charts and full filing details available with membership.