Public Charity

ANGELMAN SYNDROME FOUNDATION INC

ANGELMAN SYNDROME FOUNDATION INC, of AURORA, IL, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $3.9M in revenue, $3.7M in expenses, $2.6M in total assets. 72 publicly reported grants to this organization, totaling roughly $3.5M, appear in IRS filings.

EIN: 593092842 AURORA, IL Medical Disciplines Research NTEE: H90 Latest filing: 2025
Total Revenue$3.9M
Total Expenses$3.7M
Total Assets$2.6M
Grant Records72
Funding Total$3.5M
Filing Years2021–2025

Mission

THE FOUNDATION PROVIDES EDUCATIONAL TOOLS, INFORMATION AND SUPPORT TO INDIVIDUALS CONCERNED WITH THOSE AFFECTED BY ANGELMAN SYNDROME. THE FOUNDATION SUPPORTS AND FUNDS BASIC SCIENCE RESEARCH AND CLINICAL TRIALS.

Where $100 goes at Angelman Syndrome Foundation Inc

How Angelman Syndrome Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.

$75 Programs the work itself
$7 Management running the organization
$18 Fundraising raising the next dollar

Inside the $75 for programs

$41
Conference, clinics, and grant program
54% of program spending
$34
The foundation provides educational tools, information and support to individuals concerned with those affected by angelman syndrome
46% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

CEO Amanda Moore
TREASURER Andrew Oberwager
DIRECTOR April Canter
SECRETARY Charles Winslow Iii
DIRECTOR Christian Pache
DIRECTOR Courtney Swafford

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health & Medicine
$1,973,538 22 grants
General Support
$1,280,512 42 grants
Human & Social Services
$117,500 1 grant
Research & Policy
$50,000 1 grant
Mental Health & Substance Abuse
$15,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $3.9M $3.7M $2.6M
2024 $3.9M $3.9M $2.7M
2023 $3.6M $3.6M $2.3M
2022 $3.7M $3.6M $2.2M
2021 $2.4M $2.1M $2.1M

Between 2021 and 2025, reported annual revenue grew from $2.4M to $3.9M (+65%), with total assets most recently reported at $2.6M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for ANGELMAN SYNDROME FOUNDATION INC

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