Public Charity

SPINA BIFIDA ASSOCIATION OF AMERICA

SPINA BIFIDA ASSOCIATION OF AMERICA is a nonprofit organization categorized as Public Charity based in ALEXANDRIA, VA. Its most recent IRS filing (2024) reports revenue of $1.9M, expenses of $2.0M, total assets of $714K. Imperigo tracks 55 reported grant relationships connected to this organization totaling approximately $1.5M.

EIN: 581342181 ALEXANDRIA, VA Latest filing: 2024
Total Revenue$1.9M
Total Expenses$2.0M
Total Assets$714K
Grant Records55
Funding Total$1.5M
Filing Years2019–2024

Mission

TO PROVIDE INFORMATION ABOUT THE BIRTH DEFECT OF SPINA BIFIDA AND ITS RELATED CONDITIONS AND SUPPORT TO INDIVIDUALS LIVING WITH IT THROUGH EDUCATION, ADVOCACY, RESEARCH, AND SERVICE; TO FACILITATE RESEARCH INTO THE CAUSES, EFFECTS, AND TREATMENT OF SPINA BIFIDA; AND TO EDUCATE AND TRAIN THE PROFESSIONALS INVOLVED IN THE TREATMENT OF SPINA BIFIDA.

Officers & Directors

SECRETARY/TREASURER Anshul Varma
DIRECTOR Bryan Vodicka
DIRECTOR Chase Phillips
DIRECTOR Dawne Widener-Burrows
DIRECTOR Ellen Fremion Md Faap Facp
CHAIR-ELECT Eric Tobin

Officer compensation and complete director data available with membership.

Top Grant Purposes

RESEARCH, EDUCATION, SERVICE SUBAWARD
$435,606 3 grants
SUPPORT VILLANOVA NURSING PROGRAM
$220,643 5 grants
For grant recipient's exempt purposes
$203,750 6 grants
GENERAL SUPPORT
$134,371 8 grants
Unrestricted
$108,272 3 grants

Financial Trends

Year Revenue Expenses Assets
2024 $1.9M $2.0M $714K
2023 $2.8M $3.2M $1.0M
2022 $2.2M $2.3M $1.4M
2020 $1.5M $2.1M $1.4M
2019 $1.9M $2.2M $1.7M

Between 2019 and 2024, reported annual revenue grew from $1.9M to $1.9M (+5%), with total assets most recently reported at $714K.

Interactive year-over-year charts and full filing details available with membership.

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