Public Charity

FRIEDREICH'S ATAXIA RESEARCH ALLIANCE

FRIEDREICH'S ATAXIA RESEARCH ALLIANCE is a nonprofit organization categorized as Public Charity based in SPRINGFIELD, VA. Its most recent IRS filing (2024) reports revenue of $13.1M, expenses of $13.3M, total assets of $6.9M. Imperigo tracks 124 reported grant relationships connected to this organization totaling approximately $12.7M.

EIN: 522122720 SPRINGFIELD, VA Medical Research N.E.C. NTEE: H99 Latest filing: 2024
Total Revenue$13.1M
Total Expenses$13.3M
Total Assets$6.9M
Grant Records124
Funding Total$12.7M
Filing Years2020–2024

Mission

TO MARSHAL AND FOCUS THE RESOURCES AND RELATIONSHIPS NEEDED TO CURE FA BY RAISING FUNDS FOR RESEARCH, PROMOTING PUBLIC AWARENESS AND ALIGNING SCIENTISTS, PATIENTS, CLINICIANS, GOVERNMENT AGENCIES AND PHARMACEUTICAL COMPANIES DEDICATED TO CURING FA AND RELATED DISORDERS.

Where $100 goes at Friedreich's Ataxia Research Alliance

How Friedreich's Ataxia Research Alliance divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.

$95 Programs the work itself
$3 Management running the organization
$2 Fundraising raising the next dollar

Inside the $95 for programs

$78
Research and grant program
82% of program spending · Reported in the filing: 279 participants
$10
Clinical research infrastructurein addition to research grants, fara funds the ongoing development of domain resources in the form of vital clinical research infrastructure
11% of program spending · Reported in the filing: 1,000 individuals; 10 members
$4
Awareness, education, and outreach programs:awareness: friedreich ataxia (fa) is a rare disease; affecting 1 in 50,000 individuals
4% of program spending · Reported in the filing: 50,000 individuals; 50 individuals; 33 events

Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.

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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

DIRECTOR Alex Fielding
CHIEF SCIENTIFIC OFFICER Barbara A Tate
DIRECTOR/ GENERAL COUNSEL Brigid Brennan
DIRECTOR Derek G Hennecke
DIRECTOR Dr Holly Hedrick
DIRECTOR Dr James Mcarthur

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health & Medicine
$8,307,934 43 grants
General Support
$3,929,233 64 grants
Research & Policy
$255,159 4 grants
Human & Social Services
$58,500 1 grant
Fundraising & Sponsorship
$8,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $13.1M $13.3M $6.9M
2023 $11.2M $12.2M $7.8M
2022 $11.0M $11.1M $7.3M
2021 $7.7M $9.1M $7.5M
2020 $12.5M $7.7M $9.3M

Between 2020 and 2024, reported annual revenue grew from $12.5M to $13.1M (+5%), with total assets most recently reported at $6.9M.

Interactive year-over-year charts and full filing details available with membership.

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