Small Public Charity

JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION

JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION, of LITHIA, FL, is a Small Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $69K in revenue, $22K in expenses, $309K in total assets. 2 publicly reported grants to this organization, totaling roughly $21K, appear in IRS filings.

EIN: 521871536 LITHIA, FL Latest filing: 2024
Total Revenue$69K
Total Expenses$22K
Total Assets$309K
Grant Records2
Funding Total$21K
Filing Years2017–2024

Mission

PROVIDING AN INTERNATIONAL NETWORK OF PARENTS WHO SHARE KNOWLEDGE, EXPERIENCE, AND EMOTIONAL SUPPORT. THE FOUNDATION OFFERS A NETWORKING LIST, NEWSLETTER, AND A BIENNIAL CONFERENCE. THE JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION PLAYS AN IMPORTANT ROLE IN EDUCATING PHYSICIANS AND THEIR SUPPORT TEAMS AS WELL AS INCREASING PUBLIC AWARENESS.

Sample Grants Received

2018
Unrestricted
$11,608
2017
Unrestricted
$9,779

Showing up to 5 of 2 total records — full history available with membership.

Officers & Directors

SECRETARY Amy Ballock
DIRECTOR Cassie Meiers
DIRECTOR Cindy Schmitt
DIRECTOR Courtney Eddy
DIRECTOR Devin Hays
TREASURER Jessika Garis

Officer compensation and complete director data available with membership.

Top Grant Purposes

Unrestricted
$21,387 2 grants

Financial Trends

Year Revenue Expenses Assets
2024 $69K $22K $309K
2023 $137K $364K $260K
2022 $52K $38K $488K
2021 $164K $104K $474K
2017 $219K $197K $234K

Between 2017 and 2024, reported annual revenue declined from $219K to $69K (-68%), with total assets most recently reported at $309K.

Interactive year-over-year charts and full filing details available with membership.

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