Public Charity

NATIONAL SCLERODERMA FOUNDATION INC

NATIONAL SCLERODERMA FOUNDATION INC, of DANVERS, MA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $6.6M in revenue, $6.8M in expenses, $11.3M in total assets. 90 publicly reported grants to this organization, totaling roughly $3.5M, appear in IRS filings.

EIN: 521375827 DANVERS, MA Diseases of Specific Organs Research NTEE: H40 Latest filing: 2025
Total Revenue$6.6M
Total Expenses$6.8M
Total Assets$11.3M
Grant Records90
Funding Total$3.5M
Filing Years2020–2025

Mission

THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.

Where $100 goes at National Scleroderma Foundation Inc

How National Scleroderma Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.

$75 Programs the work itself
$16 Management running the organization
$9 Fundraising raising the next dollar

Inside the $75 for programs

$48
A relentless force in finding a cure and improving the lives of people affected by scleroderma, the National Scleroderma Foundation advances medical research, promotes disease awareness, and provides…
64% of program spending · Reported in the filing: 400 participants
$27
Research
36% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

DIRECTOR Aj Nahmad
VP OF COMMUNITY ENGAGEMENT Ashley M Pruett
TREASURER Blake Embree
VICE CHAIR Carol Feghali-Bostwick Ph D
SENIOR DIRECTOR, MISSION DELIVERY Catherine M Anastasia
DIRECTOR Christina Loccke

Officer compensation and complete director data available with membership.

Top Grant Purposes

Research & Policy
$2,291,456 17 grants
General Support
$944,890 52 grants
Health & Medicine
$191,945 14 grants
Unspecified
$39,596 6 grants

Financial Trends

Year Revenue Expenses Assets
2025 $6.6M $6.8M $11.3M
2024 $4.9M $7.0M $11.2M
2023 $6.9M $6.5M $12.9M
2021 $4.2M $4.5M $13.5M
2020 $3.8M $5.0M $11.6M

Between 2020 and 2025, reported annual revenue grew from $3.8M to $6.6M (+74%), with total assets most recently reported at $11.3M.

Interactive year-over-year charts and full filing details available with membership.

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