Public Charity

THE MARFAN FOUNDATION INC

THE MARFAN FOUNDATION INC is a nonprofit organization categorized as Public Charity based in PORT WASHINGTON, NY. Its most recent IRS filing (2025) reports revenue of $7.8M, expenses of $7.6M, total assets of $19.5M. Imperigo tracks 136 reported grant relationships connected to this organization totaling approximately $11.4M.

EIN: 521265361 PORT WASHINGTON, NY Latest filing: 2025
Total Revenue$7.8M
Total Expenses$7.6M
Total Assets$19.5M
Grant Records136
Funding Total$11.4M
Filing Years2020–2025

Mission

SEE SCHEDULE O.THE MARFAN FOUNDATION DRIVES RESEARCH, EDUCATION AND SUPPORT AND BUILDS COMMUNITY TO IMPROVE OUTCOMES, SAVE LIVES AND EMPOWER ALL PEOPLE TO THRIVE WHO ARE LIVING WITH MARFAN, LOEYS-DIETZ, VASCULAR EHLERS-DANLOS SYNDROMES, AND RELATED GENETIC AORTIC AND VASCULAR CONDITIONS. *WE PURSUE THE MOST INNOVATIVE RESEARCH AND MAKE SURE THAT IT RECEIVES PROPER FUNDING. *WE FOSTER AN INFORMED PUBLIC AND EDUCATED PATIENT COMMUNITY TO INCREASE EARLY DIAGNOSIS AND ENSURE LIFE-SAVING TREATMENT. *WE PROVIDE DEDICATED SUPPORT TO FAMILIES, CAREGIVERS, AND HEALTHCARE PROVIDERS.

Where $100 goes at The Marfan Foundation Inc

How The Marfan Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.

$81 Programs the work itself
$8 Management running the organization
$11 Fundraising raising the next dollar

Inside the $81 for programs

$36
Research -expenses $2,811,733, grants $1,512,774, revenue $0the marfan foundation advances research that saves lives and dramatically enhances the quality of life for people living with marfan syndrome, loeys-dietz…
45% of program spending
$27
Support -expenses $2,092,564, grants $12,297, revenue $32,885the marfan foundation offers cutting-edge fact-based information about marfan, loeys-dietz, vascular ehlers-danlos (veds), and other genetic aortic and vascular conditions
33% of program spending
$18
Education
22% of program spending · Reported in the filing: 5,000 people
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

DIRECTOR Alan Braverman Md
DIRECTOR Andrew Toy
DIRECTOR Anthony Yasick Md
CHAIR Bert Medina
DIRECTOR Brandy Banks Hotchkiss
DIRECTOR Bryan Maher

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$8,347,754 86 grants
Health & Medicine
$2,645,152 19 grants
Fundraising & Sponsorship
$181,750 11 grants
Human & Social Services
$51,600 2 grants
Research & Policy
$38,500 4 grants

Financial Trends

Year Revenue Expenses Assets
2025 $7.8M $7.6M $19.5M
2024 $5.5M $6.6M $18.1M
2023 $8.2M $6.8M $18.6M
2021 $4.9M $4.9M $12.5M
2020 $3.9M $6.2M $11.1M

Between 2020 and 2025, reported annual revenue grew from $3.9M to $7.8M (+100%), with total assets most recently reported at $19.5M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for THE MARFAN FOUNDATION INC

Complete financials, all 136 grant records, officer compensation, year-over-year trend charts, a geographic grant map, and data exports — across 880,000+ organizations.

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