Public Charity

NATIONAL DOWN SYNDROME CONGRESS

NATIONAL DOWN SYNDROME CONGRESS is a Public Charity headquartered in CINCINNATI, OH. Financial data from the 2025 filing: $2.1M revenue, $1.9M expenses, $745K total assets. 20 publicly reported grants to this organization, totaling roughly $264K, appear in IRS filings.

EIN: 510163631 CINCINNATI, OH Latest filing: 2025
Total Revenue$2.1M
Total Expenses$1.9M
Total Assets$745K
Grant Records20
Funding Total$264K
Filing Years2020–2025

Mission

THE MISSION OF THE NATIONAL DOWN SYNDROME CONGRESS IS TO PROVIDE INFORMATION, ADVOCACY, AND SUPPORT CONCERNING ALL ASPECTS OF LIFE FOR INDIVIDUALS WITH DOWN SYNDROME.NDSC EXISTS WITH THE PURPOSE TO PROMOTE THE INTERESTS OF PEOPLE WITH DOWN SYNDROME, TO EDUCATE THROUGH AWARENESS, TO ADVOCATE AND ENSURE THEIR RIGHTS ARE RECOGNIZED AND PROTECTED, TO EMPOWER, AND TO INSPIRE AND RESHAPE THE WAY PEOPLE UNDERSTAND AND EXPERIENCE DOWN SYNDROME.THE VISION OF THE NDSC IS A WORLD WITH EQUAL RIGHTS AND OPPORTUNITIES FOR PEOPLE WITH DOWN SYNDROME.

Officers & Directors

TREASURER Andre Pineda
DIRECTOR Anna Ebensen
1ST VICE PRESIDENT Anthony Zanfordino
2ND VICE PRESIDENT Beau Brooks
DIRECTOR Beth Foraker
DIRECTOR Bradley Carlisle

Officer compensation and complete director data available with membership.

Top Grant Purposes

GENERAL SUPPORT
$92,837 5 grants
HEALTH
$62,792 5 grants
For grant recipient's exempt purposes
$39,400 3 grants
MEDICAL OUTREACH
$23,750 2 grants
General Contribution
$15,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $2.1M $1.9M $745K
2024 $1.7M $1.7M $496K
2023 $1.9M $1.9M $439K
2022 $1.4M $1.6M $420K
2020 $877K $961K $766K

Between 2020 and 2025, reported annual revenue grew from $877K to $2.1M (+139%), with total assets most recently reported at $745K.

Interactive year-over-year charts and full filing details available with membership.

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